Social Security Changes Rules to Benefit Applicants with ALS

It’s now much easier for a person with ALS to get Social Security Disability Insurance (SSDI) benefits, thanks in part to a push by an Ohio man with ALS, John Hunter.

Regaining the Simple Pleasure of Regularity

It’s a subject that lends itself easily to jokes, but when it happens to you, it’s no laughing matter. Constipation is a real pain in the you-know-what.

Constipation is defined not by how frequently you move your bowels, but by whether the stools are hard, dry and difficult to pass. It’s not necessary to have a daily bowel movement. If you’re only going every couple of days, but can complete the task without straining, then you’re not constipated.

Does ALS cause constipation?

Small Study Says No Harm, Much Benefit Comes with NIV

Noninvasive ventilation clearly helps relieve symptoms in people with ALS, but there’s been some concern that it might hasten the decline of respiratory muscle strength.

Share the Care Circles (Part Three)

This is the final installment in a three-part series on Share the Care — organized, long-term, in-home volunteer caregiving support for people with diseases like ALS. The first two articles looked at the basics of starting a circle and some of the jobs performed by volunteers.

Share the Care Circles (Part Two)

This is the second installment in a three-part series on Share the Care — organized, long-term, in-home volunteer caregiving support for people with diseases like ALS. The other two articles look at the basics of starting a circle and keeping a circle going.

Share the Care Circles (Part One)

This is the first installment in a three-part series on Share the Care — organized, long-term, in-home volunteer caregiving support for people with diseases like ALS. The other two articles look at the jobs that can be done by volunteers and keeping a circle going .

The Pros & Cons of Genetic Testing

The Roozebooms
For Rob and Sharla Roozeboom, getting a
new diagnosis helped in family planning.

Getting a Correct Diagnosis in Neuromuscular Disease

*Note: In the print edition of Quest, this article was titled "Rounding Up the Usual -- and Not So Usual -- Suspects."

The scene is familiar to everyone who watches crime dramas. The safe has been opened, and the hotel guests' jewelry and other valuables are missing. What happened, and when, and who's responsible?

Is It Really ALS?

Dr. MillerTim Miller

Talking with Technology

Dean Adraktas is more than used to speaking his mind.

In fact, Adraktas' voice was his bread and butter for over a decade while he worked in radio news and as a radio news talk show host.

But all of that came to a standstill for the 37-year-old from Fair Oaks, Calif., when his speech began to slur as a result of ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease).

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