Are You Prepared for an Emergency?

You hope it won’t happen, but sometimes it does: an emergency. Here’s one couple’s experience and recommendations. Only their names have been changed, at their request.

A Qualified Income Trust: Keep Your Medicaid Eligibility

One of the principal responsibilities of Medicaid is to pay for nursing home care for those who qualify for this federal health care assistance program.

If you’re going into a nursing home and your state disqualifies you from receiving benefits because your income exceeds the Medicaid limit, you may feel as if you’re swimming against a strong current: You can’t qualify for nursing home Medicaid benefits because your monthly income exceeds the income cap, but you don’t receive enough monthly income to pay for your nursing home without help from Medicaid. What to do?

ALS Research Roundup April 2005

Embryonic stem cells can become motor neurons

Researchers at the University of Wisconsin-Madison announced online on Jan. 30, in Nature Biotechnology, that they’ve developed a chemical recipe to coax human embryonic stem cells to develop into motor neurons, the muscle-controlling nerve cells that are lost in ALS.

Xue-Jun Li and colleagues used two federally approved lines of stem cells and exposed them to retinoic acid early and to several other compounds later on.

Travel Tips from People on the Go

Jan and Jim Sluiter enjoy Hanauma Bay on the island of                      Oahu, Hawaii, in November 2003. Jan Sluiter relaxes in a rented                      beach wheelchair.

Can't Get In? Work It Out.

Enter

No ramps. No grab bars. No elevators. No access. No fair.

Although the Americans with Disabilities Act (ADA) has been federal law since 1990, in many places accessibility still isn’t a reality.

Equipment Corner April 2005

Like those of other fields of technology, followers of the assistive technology industry can now anticipate annual unveilings of new products.

Several assistive items that can have an impact on quality of life were launched at recent, turn-of-the-year conferences and trade shows and will be of interest to people with ALS:

Kids and ALS

The Rice Family
The Rice Family

ECUs Can Help You Take Control at Home

Major life functions that diminish or disappear because of ALS are what make the disease so brutal.

But the loss of the ability to complete the simplest everyday tasks — changing the TV channel, turning on a light, adjusting a thermostat, making a phone call — can also create considerable frustration.

That’s where an environmental control unit (ECU) can make a difference.

An ECU is a high-tech device that enables people to operate various appliances in their homes, offices or other environments through one centralized controller.

When ALS Affects the Mind

Susan Wooley Levine width=
Susan Woolley Levine
Photo by Erin Lubin

Rules for the Care and Treatment of Caregivers

Jeff Lester and family: wife Lisa, infant daughter Emily, and daughter Kelsey
Lisa, Emily, Jeff and Kelsey Lester

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