To see a list of clinical trials in your disease, go to the ClinicalTrials.gov website, select Search for Clinical Trials, and follow the instructions to narrow down your search results. (ClinicalTrials.gov is a registry of federally and privately supported clinical trials in the United States and around the world.)

Note: This list may include some studies that are not primarily focused on your disease but which make reference to it in some way.

About Clinical Trials

A clinical trial is a test, in humans, of an experimental medication or other therapy.

Clinical trials are not treatments, but experiments. Although it's possible that benefit may be derived from participating in a clinical trial, it's also possible that no benefit — or even harm — may occur. Therefore, the decision about whether to participate in a clinical trial requires careful consideration. Keep your MDA clinic doctor informed about any clinical trial participation.

Please be aware that MDA has no ability to influence who is chosen to participate in a clinical trial.

For more about clinical trials in general, see Understanding Clinical Trials, and the Quest magazine article about trial participation in neuromuscular disease, Being a Co-Adventurer.