To see a list of clinical trials in your disease, go to the ClinicalTrials.gov website, select Search for Clinical Trials, and follow the instructions to narrow down your search results. (ClinicalTrials.gov is a registry of federally and privately supported clinical trials in the United States and around the world.)

Note: This list may include some studies that are not primarily focused on your disease but which make reference to it in some way.

About Clinical Trials

A clinical trial is a test in humans of an experimental medication or therapy. Clinical trials are experiments, not treatments, and participation requires careful consideration.

Although it's possible to benefit from participating in a clinical trial, it's also possible that no benefit — or even harm — may occur. Keep your MDA clinic doctor informed about any clinical trial participation. (Note that MDA has no ability to influence who is chosen to participate in a clinical trial.)

For more about clinical trials in general, see Understanding Clinical Trials and the Quest magazine article about trial participation in neuromuscular disease, Being a Co-Adventurer.