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MDA Is Here to Help

MDA is the gateway to information, resources and specialized health care for individuals and families coping with muscle disease. At some 200 local offices around the country, MDA’s compassionate and knowledgeable staff provides support and guidance.

MDA’s comprehensive website is another valuable source of information about neuromuscular disease, research news and MDA programs.

This booklet provides basic information about MDA services and programs. For information specific to you, contact your local MDA office.

Turn to MDA with questions about:

  • Specialized health care and referrals
  • Research advances in your disease
  • Durable medical equipment needs
  • Explaining your disease to family members and others
  • Connecting with others in your area with a similar diagnosis
  • Informational brochures and publications
  • Support groups (in person, on the phone and online)
  • Support and resources for caregivers
  • Free flu shots
  • Presentations to your child’s school
  • Referrals to community-based resources
  • Advocacy
  • How you can join the fight against neuromuscular disease
  • … and more.

MDA is here to help. If your local MDA office can’t address a specific need, they’ll help you find other resources. Don’t hesitate to contact MDA for assistance and answers.

Robin Pennell smiling with her daughter

"We probably would not have survived the last four years without the help of the Muscular Dystrophy Association. When we were introduced to them, our lives changed.

We were able to network as parents and meet other parents going through similar experiences. The staff at our local MDA office has been wonderful. They’ve just accepted us as part of their family."

— Robin Pennell, Virginia, parent of a child affected by limb-girdle muscular dystrophy

"When I was diagnosed with muscular dystrophy, we didn’t know where to turn.

But the Muscular Dystrophy Association was really there for me and my family.

They walked us through what the disease was, what we could expect, how we should work together as a team to tackle this illness and make sure that it didn’t impair me from achieving my dreams."

—Vance Taylor, Maryland, limb-girdle muscular dystrophy

Vance Taylor with his young daughters

 

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Muscular Dystrophy Association — USA
National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
(800) 572-1717

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