Appendix A

MDA's Site myMuscleTeam Helps You Keep in Touch and Coordinate Volunteers
Learn about MDA's free online service and care coordination tool that helps MDA families experience the strength and support that comes from their community — or “Muscle Team” — of friends and family.

Appendix B

When the Thinking Parts of the Brain Go Awry in ALS
Frontotemporal dementia (FTD) can cause thinking and behavior changes in ALS.

Appendix C 

Talking to Your Kids About ALS
Aimee Chamernik writes about talking to her three young children about ALS. She received an ALS diagnosis in 2004.

When a Parent Has ALS
Learn about useful tips for helping children cope with a parent's ALS diagnosis.

Having Children After an ALS Diagnosis
People who receive an ALS diagnosis at a relatively young age may face the difficult decision of whether or not to have children. While some couples in this situation decide not to, others who have had children after an ALS diagnosis say it was “the best decision we ever made.”

Appendix D

A Closer Look: Diaphragm Pacing System
The NeuRx Diaphragm Pacing System (DPS) is an implanted device that treats hypoventilation (inadequate breathing) in ALS. The DPS doesn’t slow or stop the progression of ALS, but it may improve quality of life.

Appendix E

Empowering People with ALS To Be 'Research Ambassadors'
ALS research ambassadors can help bring ALS research into the forefront by lobbying in Washington, speaking at support groups and educating others about the benefits of enrolling in clinical trials.