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5/01
Facts About Myopathies
Muscular Dystrophy Association
MDA IS HERE TO HELP YOU
The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with inheritable and endocrine myopathies. Whether you're an adult who's just received a diagnosis, or the parent of a child with a myopathy, the staff at your local MDA office is there to assist you in many ways. The Association's services include:
- a nationwide network of 225 hospital-affiliated clinics staffed by top neuromuscular disease specialists
- week-long MDA summer camps for kids with neuromuscular diseases.
- professionally facilitated support groups for those affected, spouses, parents or other caregivers
- assistance with purchase and repair of wheelchairs and leg braces
- evaluations for physical, occupational and respiratory therapy
- flu shots to help protect the respiratory system
- equipment loan closets
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MDA's public health education program helps you stay abreast of research news, medical findings and disability information, through educational speakers, seminars, videos, newsletters and more. Be sure and ask your local office for MDA's latest brochures, including "Services for the Individual, Family and Community." You'll also want to get copies of "Breathe Easy: Respiratory Care for Children with Muscular Dystrophy," "Learning to Live with Neuromuscular Disease: A Message for Parents" and some publications geared to children. Many MDA brochures are available in Spanish.
Everyone registered with MDA also receives Quest, MDA's national magazine.
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