Erin Kiernan, a teenager with Friedreich's Ataxia, monitors her cardiac function closely and gets help from several specialists. Introduction Questions and Answers Does It Run in the Family? MDA's Search for Treatments and Cures MDA Is Here to Help You

MDA IS HERE TO HELP YOU

The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with Friedreich’s ataxia. The staff at your local MDA office is there to assist you in many ways. The Association’s services include:

a nationwide network of 225 hospital-affiliated clinics staffed by top neuromuscular disease specialists

professionally facilitated support groups for those affected, spouses or other caregivers

assistance with purchase and repair of wheelchairs, leg braces and augmentative communication devices

evaluations for physical, occupational and respiratory therapy

flu shots to help protect the respiratory system

equipment loan closets

MDA’s public health education program helps you to stay abreast of research news, medical findings and disability information related to FA. MDA’s Web site at www. mdausa.org offers some 3,000 pages of valuable information, including news, online chats.

MDA publishes many booklets about living with neuromuscular diseases, available in Spanish and English. Everyone registered with MDA also receives Quest, MDA’s bimonthly national magazine.

If you have any questions about FA, someone at MDA will help you find the answer.

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