Materials Listed by...	Topic	Title	Audience
			Parents & Children Caregivers Educators

Emotional and practical support at home and at school are vital to the well-being of a person living with a neuromuscular disease. The publications and articles in this area are intended to help those with disabilities and those who love and care for them to find the support they need.

Audience: Parents and Children

Written for Kids:

• Everybody's Different, Nobody's Perfect
  
• Hey! I'm Here, Too!
  
• Travis: I Got Lots of Neat Stuff
  

Written for Parents:

• Learning to Live With a Neuromuscular Disease
  
• Breathe Easy: Respiratory Care for Children With Muscular Dystrophy
  
• Journey of Love: A Parent's Guide to Duchenne Muscular Dystrophy
  
• A Teacher's Guide to Neuromuscular Disease
  
• MDA Camp: A Special Place
  
• Genetics and Neuromuscular Diseases
  

• Disease Booklets
  
• Quest Stories by Topic page
  

Audience: Adults

• Disease Booklets
  
• Genetics and Neuromuscular Diseases
  
• Facts About Plasmapheresis
  
• MDA Art Collection Brochure
  
• Independence, Awareness, Leadership:
     MDA National Task Force on Public Awareness
  
• Quest Stories by Topic page
  

Audience: Caregivers

• When a Loved One has ALS: A Caregiver's Guide
  
• Journey of Love: A Parent's Guide to Duchenne Muscular Dystrophy
  
• 101 Hints to "Help with Ease" for Patients with Neuromuscular Disease
  
• Breathe Easy: Respiratory Care for Children With Muscular Dystrophy
  
• Preparing for Emergencies
  
• "Meals"
  
• Everyday Life With ALS: A Practical Guide
  

Audience: Educators

• A Teacher's Guide to Neuromuscular Disease
  
• Quest Stories by topic: Education & Career
  
• Preparing for Emergencies
  

| What's New | Diseases | Research | Clinics & Services | Community Programs | Publications | En Español | Telethon | Ways to Help | Video | Search | Site Map | Help Now | Home |