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Amyotrophic Lateral Sclerosis Care GuidelinesThe guidelines, released by the American Academy of Neurology, are based on evidence that they’re effective in caring for people with ALS.
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October 2009 |
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Congenital Muscular Dystrophy Care GuidelinesThe first-ever care guidelines focus on the latest developments in diagnosis, treatment and medical management of these rare diseases. |
March 2011 |
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DMD Guidelines — Anesthesia CareRecommendations from MDA and the American College of Chest Physicians on the management of patients undergoing anesthesia or sedation. |
January 2008 |
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DMD Guidelines — CorticosteroidsInformation about the use of corticosteroids, such as prednisone, from the American Academy of Neurology (AAN). |
January 2005 |
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DMD Guidelines — Respiratory CareGuidelines about respiratory care from the American Thoracic Society (ATS).
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August 2004 |
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DMD/BMD Guidelines — Cardiovascular CareAmerican Academy of Pediatrics' recommendations for cardiac care in Duchenne and Becker muscular dystrophies, and carriers of those diseases. |
March 2006 |
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Duchenne Muscular Dystrophy Care GuidelinesFrom the DMD Care Considerations Working Group, a comprehensive set of clinical care recommendations for the diagnosis and management of DMD. |
December 2009 |
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Everybody’s Different, Nobody’s PerfectA colorful, easy-to-read booklet in English and Spanish helps young children understand muscular dystrophy. |
November 2006 |
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Everyday Life with ALS: A Practical GuideIn large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included. |
March 2010 |
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Exercising with a Muscle DiseaseInsights from research, medicine, exercise experts and people with muscle diseases. Includes information on recommended exercises for those with a muscle disease, as well as their caregivers. |
April 2009 |