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Message from the Interim President

A year of accomplishment and progress but also transition for MDA, 2011 was a time of uncompromising strength in our mission to make life better for those affected by neuromuscular diseases. Throughout this Annual Report, you’ll read insights from individuals with unique perspectives on MDA’s programs and activities during 2011.

MDA research pressed forward at an invigorating pace, including our translational research program which continued to forge innovative partnerships to accelerate the discovery process for new therapies.

Because strength derives from the sharing of ideas, we were excited by the participation of some 300 professionals in our MDA National Scientific Conference in Las Vegas. MDA also was proud to play a sponsorship role in the International Myotonic Dystrophy Consortium Meeting in Clearwater, Fla.

Leading neuromuscular specialists continued to provide diagnostic and follow-up care at our 200 MDA clinics nationwide, including 40 MDA/ALS centers. Once again, thousands of boys and girls with neuromuscular disorders experienced the joy of a week at MDA summer camp.

With the help of improvements in medical management, young people affected by these diseases are living longer while pursuing educational and career goals. As part of our Advocacy program, MDA’s Transitions Summit in Washington, D.C., focused on the issues facing this growing population of young adults.

As we transitioned into 2012, I was proud and humbled when MDA’s Board of Directors asked me to serve as Interim President, while still continuing as Medical Director, after MDA President & CEO Gerald C. Weinberg retired at the end of the year. With the unparalleled strength that comes from our sponsors, donors, volunteers, staff and other members of our extended MDA family, we’re confident we can look forward to attaining new levels of excellence in the furtherance of MDA’s crucially important mission.

Valerie A. Cwik, M.D.
MDA Interim President and Medical Director