Contents

• Introduction

• What Is ALS?

• Treatments for ALS

• MDA Can Help

• Caring for the Person With ALS
The Early Stages • The Later Stages • Hygiene and Skin Care • Nutrition and Swallowing • Preventing Contractures • Respiratory Care • Communication • Meeting Psychological and Emotional Needs

• Caring for the Caregiver
Your Health Care Team • Your Physical Health • Your Emotional Health • Your Loved One’s Feelings • Changes in Your Activities and Your Dreams • Opportunity for Growth

• End-of-Life Issues
From Denial to Acceptance • Hospice • Legal and Financial Issues

• Getting Help
Home Care • Nursing Homes • Hospice Care • Governmental and Other Financial Assistance • Muscular Dystrophy Association • Drug Assistance Programs • Family and Medical Leave • Veterans • Other Programs

• Resources
MDA • Resources About ALS • Resources for Caregivers • Books by and About People With ALS • Respiration, Speech and Swallowing Difficulties • Technology and Communication • Medical Equipment and Home Modifications • Financial, Legal and Medical Resources

• MDA/ALS Centers