MDA / Quest Stories by Topics - Medical and Health Care Stories

MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.

Check Out the New Digital Version of Quest!

Quest Vol. 15, No.3

Photography Bursts Fourth

This still-life image, "Carmen Red," was created by Pennsylvania photographer Carl Yeager, who has SMA. Along with a portfolio of his work, this feature illustrates how digital technology has made photography much more accessible for people with disabilities.

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Therapies & Medications

Being a Co-adventurer: Clinical Trials Involve Risks, Rights, Responsibilities (May/June 2008)
Not Enough ZZZzzzs? (March/April 2008)
Moving Away From the Blasts of the Past (Jan./Feb. 2008)
SMA: Committee Presents Clinical Care Guidelines (Nov./Dec. 2007, Quest Extra)
People With Pompe Disease Speak Out on Nutrition, Exercise (Nov./Dec. 2007, Quest Extra)
What Not to Eat – Diet in 3 Metabolic Diseases (Nov./Dec. 2007)
Massage and Breathing Exercises (Sept./Oct. 2007, Quest Extra)
Simple and Safe: Noninvasive Volume Ventilation Systems Go Beyond ‘BiPAP’ (Sept./Oct. 2007)
History of Corticosteroids (May/June 2007, Quest Extra)
Coping with Corticosteroids (May/June 2007, Quest Extra)
Get Your Yoga On (May/June 2007, Quest Extra)
Exercise Your Options — Just Say YES to Exercise (May/June 2007)
Not Always Smooth Sailing — Steroids & NMD (May/June 2007)
Dolphin Adventure (Jan./Feb. 2007)
Surgery Sometimes, Bracing Often, Caution Always: Caring for the CMT-Affected Foot (Sept. 2006)
Music: The Power to Heal (May 2006)
Let the Beat Go On: Revising Cardiac Care in Muscular Dystrophies (March 2006)
Guidelines Developed for Duchenne Respiratory Care (Nov./Dec. 2004)
MedQuest - Thyroid Replacement & Statins (May/June 2004)
MedQuest — Electrical Stimulation Devices (Mar./Apr. 2004)
Therapy Is Where You Find It (mental health counselors) (Mar./Apr. 2004)
MedQuest - Botox: Does It Help in MD? (Jan./Feb. 2004)
Doctors Hear Recommendations for Heart Care in MD (Nov./Dec. 2003)
As the Wheel Turns — Exercise Equipment (Nov./Dec. 2003)
Shopping for Your Health (prescription drug costs) (Sept./Oct. 2003)
No Sweat Exercise: Aquatics (July/ Aug.2003)
Saddle Up! (equestrian physical therapy) (Aug. 2001)
Living With and Without Pain (Aug. 2001)
Inflammation (June 2001)
Getting to the Point of Acupuncture (Apr. 2001)
Sorting Out Speech Services (Feb. 2001)
Marvelous Massage (Dec. 2000)
Physical & Aquatic Therapy (June 2000)
High-Tech Babies, Hands-On Coping (Feb. 2000)
Skills for School and Play (occupational therapy) (Dec. 1999)
Skills for the Job of Living (occupational therapy for adults) (Oct. 1999)
Hard to Swallow: The Dangers of Dysphagia (Aug. 1999)
Carnitine and Coenzyme Q10: Miracle Cures or Money Down the Drain? (Feb. 1999)
The Brain in DMD (Jan. 1997)
Steroids in MD (Summer 1996)
Medicine with a Personal Touch (ventilation) (1995)

Access to Care

InfoQuest - Resources (Jan./Feb. 2008)
InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
Books (Sept./Oct. 2007)
As the Wheel Turns: Just Hop Up on the Table… (Nov./Dec. 2006)
Stem Cells With Muscle Potential Found (Nov./Dec. 2004)
Open Wide and Say 'Ahhh...' (dental care) (Dec. 2002)
Health Care Access an Obstacle for People With Disabilities (Dec. 2002)
Mastery of Life (a personal story) (Feb. 1999)
When Getting Care is Hard to Do (April 1998)

Medical Procedures

Moving Away From the Blasts of the Past (Jan./Feb. 2008)
Truth, Lies and Tracheostomies (July/August 2007)
Surgery Sometimes, Bracing Often, Caution Always: Caring for the CMT-Affected Foot (Sept. 2006)
Sorting Out OPMD (Nov./Dec. 2004)
The Great Trach Escape (noninvasive ventilation) (Sept./Oct. 2003)
When Form Meets Function (shoulder surgery) (Mar./Apr. 2003)
Staying Ahead of the Curve (scoliois surgery) (Aug. 2002)
Cutting the Cord - Understanding Heel Cord Surgery (Oct. 2001)
Coping With Anesthesia (June 2000)
Taking the Scare Out of Hospital Care for Your Child (June 1998)
Setting the Record Straight on Scoliosis Surgery (Jan. 1997)
Desperate Remedies (heart surgery) (Fall 1996)
Fight Against Contractures (Fall 1996)

MDA Clinics

Doctors, Parents and Kids: Achieving an Effective Partnership (May/June 2007)
Debatable Destinies – Duchenne Muscular Dystrophy Carriers Carry on, Despite Uncertainty (Nov./Dec. 2007)
Medicare Drug Policy Concerns (Nov./Dec. 2004)
Making Your MDA Clinic Work for You (Feb. 2003)
Who's Who on the Health Care Team and How to Be Its Captain (Feb. 1999)

Health Insurance & Costs

The SCHIP Football (March/April 2008)
InfoQuest - Resources (Jan./Feb. 2008)
InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
MDA Task Force Sends Letters About Medicare DME Restrictions (Sept./Oct. 2007)
Medicaid Work Incentives (May/June 2005)
The Money Trail (July/Aug. 2003)
Shopping for Your Health (prescription drug costs) (Sept./Oct. 2003)
From Where I Sit — The Middle-Class Trap (July/Aug. 2003)
Health Insurance (Aug. 2000)
Finding Medical Information Online (June 2000)
Keeping Your Children Covered (Apr. 2000)
Tenacity and Cranberry Juice vs. the Insurance Company (Apr. 1999)
Democracy Takes on Managed Care (Dec. 1997)
Managing Managed Care (June 1997)

General Health Care

What’s a Medical Home? (May/June 2008, Quest Extra)
InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
Books (Sept./Oct. 2007)
Nutritional Considerations (May/June 2007, Quest Extra)
Checking It Out When You're Checking In (March/April 2007)
Putting Your Best Foot Forward (Sept. 2005)
Sing Out! (May/June 2005)
Fighting Fatigue (Jan./Feb. 2005)
Substance Abuse (July/Aug. 2004)
Weighing Your Options (weight loss) (July/Aug. 2004)
Caring and Comfort (hospice) (Nov./Dec. 2003)
As the Wheel Turns — Exercise Equipment (Nov./Dec. 2003)
Uncovering Causes of Cardiac Problems in MDs (Sept./Oct. 2003)
- Loss of Dystrophins Two Attachments in Heart Cells Likely Culprit in DMD
- Direct Heart Damage Can Play Role in LGMDs
- Cardiac Defects in MMD2 Probably Not Neurological
- Gene Transfer Corrects Cardiac Problem in DMD Mice
In Search of a Good Night's Sleep (May/June 2003)
Open Wide and Say 'Ahhh...' (dental care) (Dec. 2002)
Vent Users Report Good Quality of Life (Dec. 2002)
Staying Healthy With a Chronic Disease (June 2002)
Sticks and Stones Break Fragile Bones (Aug. 2001)
Growing Up and Taking Charge (June 2001)
Living With and Without Pain (Aug. 2001)
Keeping Your Focus: Eye Care (Dec. 2000)
Better Nights for Better Days (Oct. 2000)
Getting a Grip on Vitamins (Oct. 2000)
Aging with NMD (Aug. 2000)
Gut Reactions: Correcting Constipation (Aug. 2000)
Finding Medical Information Online (June 2000)
Stiffness and Cramps (June 2000)
Simply Stated... Oxidative Stress (Apr. 2000)
The Heart is a Muscle, Too - Part II (June 1999)
The Heart is a Muscle, Too - Part I (Apr. 1999)
Who's Who on the Health Care Team and How to Be Its Captain (Feb. 1999)
The Lurking Danger of Pressure Sores (Feb. 1999)
You Can Take it With You (disability benefits) (Dec. 1998)
A Breath of Fresh Air (Dec. 1998)
What Worries Doctors Most About Pregnancy (Dec. 1997)
Pain, Pain, Go Away (Summer 1996)

Diagnosis and Genetics

SMA: Committee Presents Clinical Care Guidelines (Nov./Dec. 2007, Quest Extra)
Debatable Destinies – Duchenne Muscular Dystrophy Carriers Carry on, Despite Uncertainty (Nov./Dec. 2007)
A Range of Outcomes – Myotubular Myopathy (Sept./Oct. 2007)
Do You Want to Know? – Prenatal & Newborn Genetic Diagnosis (July/August 2007)
Is There a Test for My Disease? (Sept./Oct. 2004)
Rounding Up the Usual Suspects (diagnosis) (May/June 2003)
The Pros and Cons of Genetic Testing (May/June 2003)
Genetics Myths (Dec. 2001)
Elevated Enzymes (Apr. 2001)
Genetic Testing (Dec. 2000)
EMGs and NCVs (Oct. 2000)
Muscle Biopsies (Aug. 2000)
Genetic Counselors Give Support (Apr. 2000)
The Creatine Kinase Test (Feb. 2000)
What Ails Ya? (Apr. 1997)

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