Therapies & Medications

• The Brain in MMD (September/October 2008)
• Recent Advances in DMD Gene Therapy (September/October 2008)
• Being a Co-adventurer: Clinical Trials Involve Risks, Rights, Responsibilities (May/June 2008)
• Not Enough ZZZzzzs? (March/April 2008)
• Moving Away From the Blasts of the Past (Jan./Feb. 2008)
• SMA: Committee Presents Clinical Care Guidelines (Nov./Dec. 2007, Quest Extra)
• People With Pompe Disease Speak Out on Nutrition, Exercise (Nov./Dec. 2007, Quest Extra)
• What Not to Eat – Diet in 3 Metabolic Diseases (Nov./Dec. 2007)
• Massage and Breathing Exercises (Sept./Oct. 2007, Quest Extra)
• Simple and Safe: Noninvasive Volume Ventilation Systems Go Beyond ‘BiPAP’ (Sept./Oct. 2007)
• History of Corticosteroids (May/June 2007, Quest Extra)
• Coping with Corticosteroids (May/June 2007, Quest Extra)
• Get Your Yoga On (May/June 2007, Quest Extra)
• Exercise Your Options — Just Say YES to Exercise (May/June 2007)
• Not Always Smooth Sailing — Steroids & NMD (May/June 2007)
• Dolphin Adventure (Jan./Feb. 2007)
• Surgery Sometimes, Bracing Often, Caution Always: Caring for the CMT-Affected Foot (Sept. 2006)
• Music: The Power to Heal (May 2006)
• Let the Beat Go On: Revising Cardiac Care in Muscular Dystrophies (March 2006)
• Guidelines Developed for Duchenne Respiratory Care (Nov./Dec. 2004)
• MedQuest - Thyroid Replacement & Statins (May/June 2004)
• MedQuest — Electrical Stimulation Devices (Mar./Apr. 2004)
• Therapy Is Where You Find It (mental health counselors) (Mar./Apr. 2004)
• MedQuest - Botox: Does It Help in MD? (Jan./Feb. 2004)
• Doctors Hear Recommendations for Heart Care in MD (Nov./Dec. 2003)
• As the Wheel Turns — Exercise Equipment (Nov./Dec. 2003)
• Shopping for Your Health (prescription drug costs) (Sept./Oct. 2003)
• No Sweat Exercise: Aquatics (July/ Aug.2003)
• Saddle Up! (equestrian physical therapy) (Aug. 2001)
• Living With and Without Pain (Aug. 2001)
• Inflammation (June 2001)
• Getting to the Point of Acupuncture (Apr. 2001)
• Sorting Out Speech Services (Feb. 2001)
• Marvelous Massage (Dec. 2000)
• Physical & Aquatic Therapy (June 2000)
• High-Tech Babies, Hands-On Coping (Feb. 2000)
• Skills for School and Play (occupational therapy) (Dec. 1999)
• Skills for the Job of Living (occupational therapy for adults) (Oct. 1999)
• Hard to Swallow: The Dangers of Dysphagia (Aug. 1999)
• Carnitine and Coenzyme Q10: Miracle Cures or Money Down the Drain? (Feb. 1999)
• The Brain in DMD (Jan. 1997)
• Steroids in MD (Summer 1996)
• Medicine with a Personal Touch (ventilation) (1995)

Access to Care

• GINA Gets Thumbs-Up from Congress (July/August 2008)
• InfoQuest - Resources (Jan./Feb. 2008)
• InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
• Books (Sept./Oct. 2007)
• As the Wheel Turns: Just Hop Up on the Table… (Nov./Dec. 2006)
• Stem Cells With Muscle Potential Found (Nov./Dec. 2004)
• Open Wide and Say 'Ahhh...' (dental care) (Dec. 2002)
• Health Care Access an Obstacle for People With Disabilities (Dec. 2002)
• Mastery of Life (a personal story) (Feb. 1999)
• When Getting Care is Hard to Do (April 1998)

Medical Procedures

• Moving Away From the Blasts of the Past (Jan./Feb. 2008)
• Truth, Lies and Tracheostomies (July/August 2007)
• Surgery Sometimes, Bracing Often, Caution Always: Caring for the CMT-Affected Foot (Sept. 2006)
• Sorting Out OPMD (Nov./Dec. 2004)
• The Great Trach Escape (noninvasive ventilation) (Sept./Oct. 2003)
• When Form Meets Function (shoulder surgery) (Mar./Apr. 2003)
• Staying Ahead of the Curve (scoliois surgery) (Aug. 2002)
• Cutting the Cord - Understanding Heel Cord Surgery (Oct. 2001)
• Coping With Anesthesia (June 2000)
• Taking the Scare Out of Hospital Care for Your Child (June 1998)
• Setting the Record Straight on Scoliosis Surgery (Jan. 1997)
• Desperate Remedies (heart surgery) (Fall 1996)
• Fight Against Contractures (Fall 1996)

MDA Clinics

• Doctors, Parents and Kids: Achieving an Effective Partnership (May/June 2007)
• Debatable Destinies – Duchenne Muscular Dystrophy Carriers Carry on, Despite Uncertainty (Nov./Dec. 2007)
• Medicare Drug Policy Concerns (Nov./Dec. 2004)
• Making Your MDA Clinic Work for You (Feb. 2003)
• Who's Who on the Health Care Team and How to Be Its Captain (Feb. 1999)

Health Insurance & Costs

• GINA Gets Thumbs-Up from Congress (July/August 2008)
• The SCHIP Football (March/April 2008)
• InfoQuest - Resources (Jan./Feb. 2008)
• InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
• MDA Task Force Sends Letters About Medicare DME Restrictions (Sept./Oct. 2007)
• Medicaid Work Incentives (May/June 2005)
• The Money Trail (July/Aug. 2003)
• Shopping for Your Health (prescription drug costs) (Sept./Oct. 2003)
• From Where I Sit — The Middle-Class Trap (July/Aug. 2003)
• Health Insurance (Aug. 2000)
• Finding Medical Information Online (June 2000)
• Keeping Your Children Covered (Apr. 2000)
• Tenacity and Cranberry Juice vs. the Insurance Company (Apr. 1999)
• Democracy Takes on Managed Care (Dec. 1997)
• Managing Managed Care (June 1997)

General Health Care

• MDA, SMA Groups Release Family Version of SMA Standard of Care (July/August 2008)
• What’s a Medical Home? (May/June 2008, Quest Extra)
• InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
• Books (Sept./Oct. 2007)
• Nutritional Considerations (May/June 2007, Quest Extra)
• Checking It Out When You're Checking In (March/April 2007)
• Putting Your Best Foot Forward (Sept. 2005)
• Sing Out! (May/June 2005)
• Fighting Fatigue (Jan./Feb. 2005)
• Substance Abuse (July/Aug. 2004)
• Weighing Your Options (weight loss) (July/Aug. 2004)
• Caring and Comfort (hospice) (Nov./Dec. 2003)
• As the Wheel Turns — Exercise Equipment (Nov./Dec. 2003)
• Uncovering Causes of Cardiac Problems in MDs (Sept./Oct. 2003)
  • Loss of Dystrophins Two Attachments in Heart Cells Likely Culprit in DMD
  • Direct Heart Damage Can Play Role in LGMDs
  • Cardiac Defects in MMD2 Probably Not Neurological
  • Gene Transfer Corrects Cardiac Problem in DMD Mice
• In Search of a Good Night's Sleep (May/June 2003)
• Open Wide and Say 'Ahhh...' (dental care) (Dec. 2002)
• Vent Users Report Good Quality of Life (Dec. 2002)
• Staying Healthy With a Chronic Disease (June 2002)
• Sticks and Stones Break Fragile Bones (Aug. 2001)
• Growing Up and Taking Charge (June 2001)
• Living With and Without Pain (Aug. 2001)
• Keeping Your Focus: Eye Care (Dec. 2000)
• Better Nights for Better Days (Oct. 2000)
• Getting a Grip on Vitamins (Oct. 2000)
• Aging with NMD (Aug. 2000)
• Gut Reactions: Correcting Constipation (Aug. 2000)
• Finding Medical Information Online (June 2000)
• Stiffness and Cramps (June 2000)
• Simply Stated... Oxidative Stress (Apr. 2000)
• The Heart is a Muscle, Too - Part II (June 1999)
• The Heart is a Muscle, Too - Part I (Apr. 1999)
• Who's Who on the Health Care Team and How to Be Its Captain (Feb. 1999)
• The Lurking Danger of Pressure Sores (Feb. 1999)
• You Can Take it With You (disability benefits) (Dec. 1998)
• A Breath of Fresh Air (Dec. 1998)
• What Worries Doctors Most About Pregnancy (Dec. 1997)
• Pain, Pain, Go Away (Summer 1996)

Diagnosis and Genetics

• The Brain in MMD (September/October 2008)
• SMA: Committee Presents Clinical Care Guidelines (Nov./Dec. 2007, Quest Extra)
• Debatable Destinies – Duchenne Muscular Dystrophy Carriers Carry on, Despite Uncertainty (Nov./Dec. 2007)
• A Range of Outcomes – Myotubular Myopathy (Sept./Oct. 2007)
• Do You Want to Know? – Prenatal & Newborn Genetic Diagnosis (July/August 2007)
• Is There a Test for My Disease? (Sept./Oct. 2004)
• Rounding Up the Usual Suspects (diagnosis) (May/June 2003)
• The Pros and Cons of Genetic Testing (May/June 2003)
• Genetics Myths (Dec. 2001)
• Elevated Enzymes (Apr. 2001)
• Genetic Testing (Dec. 2000)
• EMGs and NCVs (Oct. 2000)
• Muscle Biopsies (Aug. 2000)
• Genetic Counselors Give Support (Apr. 2000)
• The Creatine Kinase Test (Feb. 2000)
• What Ails Ya? (Apr. 1997)