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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.
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Check Out the New Digital Version of Quest! |
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Get Up, Get Out, Get Going
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Check out our selection of holiday gifts to enable and enhance your active lifestyle.
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Stories by Topic
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OFF THE VENT AND YEARNING TO LEARN
Brent Kurtz's story was told in "High-Tech Babies,
Hands-On Coping" (Quest, vol. 7, no. 1).
Brent Kurtz today |
Brent, who has nemaline myopathy, won't be 3 until October, but he's already
going to school, through an Ohio-based early intervention program. The son of
Doug and Tina Kurtz of Dayton, Ohio, he's able to be off the ventilator while
he's awake and is getting occupational, physical and speech therapies as part
of his school day. He's also learning sign language so his communication skills
won't suffer while he catches up on speaking. "Tina and I feel he's just like a
sponge now," his father says of Brent's new rapid learning phase.
Brent Kurtz as a baby |
Tina continues to work as a high school social studies teacher and cheerleading
coach. Doug, who stayed home with Brent during his first year, now works
part-time. In July, he plans to start nursing school.
The Kurtzes have nursing care for Brent 18H hours a day and have him to
themselves in the evening. Doug and Tina recently took students from her school
on a three-day trip to Washington. The trip took three months of planning, but
was worth it.
"Parents need that time to get away and recharge their batteries," Doug says.
He and Tina maintain and update their Web site, now at www.caringbridge.com/page/brentkurtz. 
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