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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.


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  Home> Publications > QUEST > QUEST Vol 11 No 2, MARCH/APRIL 2004
To Boldly Go

Dr. Appel  
  Angela Wrigglesworth loves the accessible tree house at Camp for All in Houston.  

Up a Tree Texas Campers Love Their Accessible New House

"I had one of those moments in life where you say to yourself, Yes! This is it! This is what its all about!"

Angela Wrigglesworth gets giddy thinking about the first

time she watched a group of older MDA campers roll into the wheelchair-accessible tree house at Camp for All, the home of MDAs Houston summer camp.

Maureen McGovern      
     
Dr. Appel    
       

Wrigglesworth, 25, is a member of MDAs National Task Force on Public Awareness and has spinal muscular atrophy. For her, the tree house built in 2002 represents all the things people with disabilities arent supposed to be able to do, but do anyway.

Located 25 feet off the ground in a beautiful oak tree, the uncovered platform can hold 10 to 12 people in wheelchairs and their helpers. Its reached by a 100-foot ramp that winds through the surrounding trees.

Once in the tree house, its easy to imagine being a bird. Campers can see the ground below through the slatted floor and parts of the sky through the branches, while enjoying a cool breeze and the rustle of leaves. Says Anne Swisher, MDA health care service coordinator in Houston, "Its a wonderful feeling of freedom."

 

School and Camp Are the Same for Massachusetts Senior

Maureen McGovern  
Jillian Bzdula enjoys swimming at the Massachusetts Hospital School, where MDA holds its summer camp.  

Not many kids think their school is so wonderful it should be in a magazine. But that was Jillian Bzdulas thought when she wrote to Quest about the Massachusetts Hospital School, a boarding school in Canton for students with disabilities, many of whom have forms of muscular dystrophy.

Jillian, 19, has spinal muscular atrophy and uses a wheelchair, as do most of the other students at her school. She attends classes during the week (shes a senior), then goes home to Taunton, Mass., on weekends.

"Its just like being at a regular school but everybody around you has some sort of physical disability," she explains. In addition to regular academics, the school offers a wide range of wheelchair-accessible sports, including football, basketball, swimming and hockey.

Dr. Appel  

The school is such a perfect spot for kids with disabilities that MDA holds its summer camp, Camp Florian, there each year for kids from Massachusetts, New Hampshire and Rhode Island.

"Its a beautiful place, on a lake, with a pontoon boat, an indoor heated accessible pool, a bowling alley, radio station you name it, theyve got it!" says Mary Leeman, MDAs area health care service coordinator.

 

Snooze You Lose!

Dont Miss
Camp Sign-Up

Nows the time to sign up for MDA summer camp. To register, contact your local MDA office and then get ready to have a totally great time!

Check out the Summer Camp page on the MDA Web site (www.mda.org/clinics/camp/) for news and pictures from MDA camps all summer long. The site has good information for your parents, too.

Jillian notes that some MDA campers get jealous when they find out she gets to stay at the camp location all year long. "Theyre jealous that we get to play football," she says. Shes been attending MDA camp for 12 years and the Massachusetts Hospital School for three.

"At first I was rebellious about the idea of going to the school because I figured all the kids would be in wheelchairs and I wouldnt feel comfortable," Jillian recalls. "But the older I got, the weaker I got, and I realized that if I wanted to stay healthy I needed physical and occupational therapy, and I finally decided it was the best place to be."

Now does she wish she had made the decision to go
to the school sooner? "Oh yeah!" she declares.

 
     
     
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