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First MDA Mattie Stepanek Fellowship Award Goes to Columbia Researcher

TUCSON, Ariz., Dec. 21, 2005 – Stefanie Zanssen, a physician-scientist in the Department of Neurology at Columbia University in New York, is the first recipient of the new Mattie Stepanek Postdoctoral Research Fellowship Award from the Muscular Dystrophy Association.

The award gives Zanssen $60,000 a year for 2006 and 2007, to support her research and training in the biology of mitochondria, miniature organs that produce cellular energy throughout the body.

The Mattie Stepanek fellowship program began last year, after the death of former MDA Goodwill Ambassador Mattie Stepanek, who died on June 22, 2004, at the age of 13, of a mitochondrial muscle disease.

Mattie was a world-renowned author of five best-selling poetry books and was known for his frequent television appearances, including memorable visits to the Oprah Winfrey show, where he talked about his poetry, his disease and his desire for world peace.

“MDA is proud to award this fellowship in the spirit of one of Mattie’s greatest dreams: to find cures for neuromuscular diseases,” said MDA President & CEO Robert Ross.

Zanssen, who has doctorates in biochemistry and medicine from the Technical University of Aachen in Germany, is studying the genetic control of mitochondrial proliferation.

Specifically, Zanssen studies the development of ‘ragged red’ muscle fibers, which contain huge numbers of abnormal mitochondria and are associated with muscle weakness. Understanding what triggers the proliferation of these abnormal mitochondria could lead to strategies to halt, or even reverse, the progress of some mitochondrial diseases.

MDA is a voluntary health agency working to defeat more than 40 neuromuscular diseases through programs of worldwide research, comprehensive services, and far-reaching professional and public health education.

For more information, go to www.mda.org.

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