It’s easy to become overwhelmed by news that you or a loved one is affected by spinal muscular atrophy (SMA). That’s why the Muscular Dystrophy Association is here to help. MDA offers a wide range of services to assist you and your family throughout your journey with SMA. 

The first step in connecting with these services is to contact your local MDA office where dedicated staff stands ready to answer your questions and introduce you to the vast network of support available to you through MDA, including:

• Nationwide network of clinics staffed by top neuromuscular disease specialists
• MDA summer camps for kids with neuromuscular diseases
• Help with locating durable medical equipment through MDA’s national equipment loan program
• Financial assistance with repairs to all types of medical equipment
• Annual occupational, physical, respiratory and speech therapy consultations
• Annual flu shots
• Support groups for those affected, spouses, parents or other caregivers
• Online support services through the e-community myMDA and through myMuscleTeam, a program that helps you recruit and coordinate help from your network of friends and family

In addition to the services listed above, MDA’s public health education program helps you stay abreast of research news, medical findings and disability information through magazines, publications, educational speakers, seminars, videos and newsletters.

Once you contact your local MDA office, you’ll begin receiving Quest, MDA’s award-winning quarterly magazine. Quest publishes detailed articles about research findings, medical and day-to-day care, helpful products and devices, social and family issues, and much more. Other MDA publications can be found at mda.org/publications; many booklets are available in Spanish.

If you have questions, please know that you have come to the right place by reaching out to MDA. To connect with the MDA office serving your area, please call (800) 572-1717, or enter your ZIP code into the MDA office locator box on this website.

In addition to MDA, a wide range of resources are available to assist with such issues as medical benefits, home modification, accessible travel, employment and more. MDA’s knowledgeable staff maintains resource directories to assist in accessing various federal, state and community-based resources. Please contact the MDA office in your area for assistance with resource referrals, or visit MDA's state-by-state guide for additional resources in your area.