Alexis enjoys art and math in school. Her other hobbies are dancing and singing. Alexis also enjoys attending MDA-sponsored summer camp every year and has appeared in national print ad campaigns for the Association.
Barbara has been painting and teaching art classes for many years. Her works have been exhibited in numerous art fairs and expositions in California. While a resident of the state, Barbara served on the San Diego Art Council for six years and was a member of several art organizations.
Sebastian is an internationally known artist whose work has been exhibited in Argentina, Germany, Venezuela and across the United States. Influenced by literature, mythology and classical music, his works are included in private, public and corporate collections worldwide. Sebastian is also a writer and received the MDA Personal Achievement Award for Florida in 1995.
Edith retired from the California Mental Health Department as a psychiatric technician in 1982. Soon after, she began painting and exhibited her works in many juried art shows and local galleries in the Payson, Ariz., area where she lived for several years. Edith also was a published writer of poetry and short stories.
Steven created this artwork at age 10 while attending the 1999 MDA summer camp in Heber, Ariz. His favorite hobbies include drawing, swimming and riding horses.
Melina has proficiency certificates in English from Cambridge and Oxford Universities, and attended the Panteion University of Athens. She enjoys painting and sketching, and has participated in a number of art exhibits. She also has written and published literature.
When a medical emergency strikes — and the patient is a person with a neuromuscular disease— it’s not just getting to the emergency room quickly that’s critical. It’s also critical to ensure the ER staff understands the patient’s special needs caused by muscle disease.