Alexis Villa

Location

Pico Rivera, CA

Alexis enjoys art and math in school. Her other hobbies are dancing and singing. Alexis also enjoys attending MDA-sponsored summer camp every year and has appeared in national print ad campaigns for the Association.

Full name: 
Alexis Villa

Camp Fun

Artist: 
Alexis Villa
Medium: 
Marker

Barbara Danielson

Barbara has been painting and teaching art classes for many years. Her works have been exhibited in numerous art fairs and expositions in California. While a resident of the state, Barbara served on the San Diego Art Council for six years and was a member of several art organizations.

Location

Lakewood, CO
Full name: 
Barbara Danielson

Braid Of Gold

Artist: 
Barbara Danielson
Medium: 
Colored Pencil

Sebastian Spreng

Location

Miami, FL

Sebastian is an internationally known artist whose work has been exhibited in Argentina, Germany, Venezuela and across the United States. Influenced by literature, mythology and classical music, his works are included in private, public and corporate collections worldwide. Sebastian is also a writer and received the MDA Personal Achievement Award for Florida in 1995.

Full name: 
Sebastian Spreng

House by the River

Artist: 
Sebastian Spreng
Medium: 
Oil

Gerald Jean-Pierre

Location

Miami, FL

Gerald donated this painting at age 19. He won several awards for his artwork, including the Dade County Silver Knight Award.

Full name: 
Gerald Jean-Pierre

Skeletal Study in Wheelchair

Artist: 
Gerald Jean-Pierre
Medium: 
Mixed Media

Edith Sarraille

Location

Sun City, CA

Edith retired from the California Mental Health Department as a psychiatric technician in 1982. Soon after, she began painting and exhibited her works in many juried art shows and local galleries in the Payson, Ariz., area where she lived for several years. Edith also was a published writer of poetry and short stories.

Full name: 
Edith Sarraille

Mamacita

Artist: 
Edith Sarraille
Medium: 
Oil

Steven Beuerlein

Location

Phoenix, AZ

Steven created this artwork at age 10 while attending the 1999 MDA summer camp in Heber, Ariz. His favorite hobbies include drawing, swimming and riding horses.

Full name: 
Steven Beuerlein

Parrot in a Berry Bush

Artist: 
Steven Beuerlein
Medium: 
Crayon

Melina Fatsiou

Location

Huntsville, AL

Melina has proficiency certificates in English from Cambridge and Oxford Universities, and attended the Panteion University of Athens. She enjoys painting and sketching, and has participated in a number of art exhibits. She also has written and published literature.

Full name: 
Melina Fatsiou

Blue Portrait

Artist: 
Melina Fatsiou
Medium: 
Acrylic

Research Briefs: FA, MG, MM, MMD1, gene therapy

Edison drugs target FA, mitochondrial diseases

Going to the Emergency Room: Tips for People with Neuromuscular Diseases

When a medical emergency strikes — and the patient is a person with a neuromuscular disease— it’s not just getting to the emergency room quickly that’s critical. It’s also critical to ensure the ER staff understands the patient’s special needs caused by muscle disease.

Pages