Ruth Rubinstein

Location

Brooklyn, NY

Ruth began creating artwork as a child, but set it aside during her career years. She resumed painting during her retirement. She worked in all media and favored many subjects such as landscapes, portraits and flowers.

Full name: 
Ruth Rubinstein

Chasing Windmills

Artist: 
Ruth Rubinstein
Medium: 
Watercolor

Vauta Tenney

Location

Shreveport, LA

Vauta began painting more than 20 years ago. She also made baskets, cutting boards and carved wooden dolls. This piece was her first donation to the MDA Art Collection.

Full name: 
Vauta Tenney

Arizona

Artist: 
Vauta Tenney
Medium: 
Oil

Joann Hornback

Location

Elizabethtown, KY

Joann has been painting for many years. She attended Stanford University and is a charter member of the Kentucky Very Special Arts Association.

Full name: 
Joann Hornback

Acorns

Artist: 
Joann Hornback
Medium: 
Oil

Ferdinand Roccanti

Location

Granger, IN

Ferdinand began painting in 1994 after receiving a diagnosis of myasthenia gravis. This painting was done from a photograph of Dr. Jonathan D. Glass, director of the MDA/ALS Center at Emory University School of Medicine in Atlanta.

Full name: 
Ferdinand Roccanti

Dr.Glass

Artist: 
Ferdinand Roccanti
Medium: 
Oil

Lynette Battles

Location

Rathdrum, ID

A recognized artist, Lynette studied in San Francisco and at the Joslyn Center for the Arts in Torrance, Calif. Many of her works focus on depicting the American prairie. Her award-winning work has appeared in numerous juried shows, including the Portland (Oregon) Art Museum; Boise State University; Corbin Art Center (Spokane, Wash.) and the Gallery Genesis, Chicago.

Full name: 
Lynette Battles

From Russia with Love

Artist: 
Lynette Battles
Medium: 
Oil

Sybil Kleiman

Location

Coconut Creek, FL

Sybil is a freelance art history lecturer and art instructor as well as an artist. She has received numerous awards in juried shows, and her paintings are included in several private collections. Sybil was honored in Who’s Who in American Women in 1995-1996 and was named recipient of MDA’s 1996 State Personal Achievement Award for Florida.

Full name: 
Sybil Kleiman

Hanging Out II

Artist: 
Sybil Kleiman
Medium: 
Oil

Going to the Emergency Room: Tips for People with Neuromuscular Diseases

When a medical emergency strikes — and the patient is a person with a neuromuscular disease— it’s not just getting to the emergency room quickly that’s critical. It’s also critical to ensure the ER staff understands the patient’s special needs caused by muscle disease.

Five Strategies for Treating Neuromuscular Disease

Antisense oligonucleotides block flawed genetic instructions

Antisense oligonucleotides — also called antisense, oligos, or simply AONs— are pieces of genetic code that keep other genetic code from being processed. Designed to pair up with a particular sequence of DNA or RNA, AONs can change, block or destroy targeted genetic instructions in a variety of ways.

Clinical Trials

About clinical trials

A clinical trial is a test in humans of an experimental medication or therapy. Clinical trials are experiments, not treatments, and participation requires careful consideration.

Although it's possible to benefit from participating in a clinical trial, it's also possible that no benefit — or even harm — may occur. Keep your MDA clinic doctor informed about any clinical trial participation. (Note that MDA has no ability to influence who is chosen to participate in a clinical trial.)

Research

MDA’s commitment to research on myasthenia gravis began many years ago when little was known about the cause of MG and its mortality rate was high.

In the early 1970s, MDA-funded researchers helped establish the autoimmune nature of MG. They showed that people with the disease have a reduced number of ACh receptors, and that antibodies to the receptors can induce MG in laboratory animals.

These discoveries led swiftly to the lifesaving use of immunosuppressant drugs to treat the disease.

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