CoQ10, Lisinopril Trial in DMD, BMD, LGMD2C-2F, LGMD2I

Researchers at five U.S. and one Canadian center are conducting a clinical trial of the medications coenzyme Q10 and lisinopril to determine their possible beneficial effects on heart function in Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD) and five forms of limb-girdle muscular dystrophy (LGMD).

Jerry Mendell's Research Team Receives Award

A team headed by neurologist Jerry Mendell, a longtime MDA research grantee and director of the MDA Clinic at Nationwide Children's Hospital in Columbus, Ohio, has received the prestigious Annals of Neurology prize for an outstanding contribution to clinical neuroscience.

Caregivers: Teaching Independence

When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.”

His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy— to MDA summer camp.

“We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy, there are people like you and me here!’ He was just beaming.”

Research Updates Fall 2011

Induced Stem Cells Require Cautious Approach

Stem cells have been much in the news lately, including for neuromuscular diseases.

MDA Awards $13.7 Million in Research Grants

The Muscular Dystrophy Association has awarded 40 research grants totaling $13.7 million to advance the understanding of disease processes and uncover new strategies for treatments and cures of muscular dystrophy and the more than 40 other diseases in the Association's program.

The new grants were recommended by MDA's Scientific and Medical Advisory Committees and approved by MDA's Board of Directors at its July 2011 meeting.

Dwain Smith

Location

padycah, KY
2011
Full name: 
Dwain Smith

Zeeland

Artist: 
Dwain Smith
Disease: 
Limb-Girdle Muscular Dystrophy (LGMD)
Medium: 
Acrylic

Zeeland

Artist: 

Dwain has been painting for many years, and worked as a goldsmith and silversmith for 20 years.  He was fortunate to visit Zeeland, located in southwest Netherlands, as winter was morphing into spring.   Dwain used a heavy impasto underpainting denoting the spring winds and the earth erupting with a full bounty of blooming bulbs.  He is a member of the Paducah Area Painters Alliance and exhibits works in their co-op gallery in Paducah.

Shawl

Artist: 

Ariane was an accomplished New York artist whose works are in many permanent collections including the Metropolitan Museum of Art, New York and the Philadelphia Museum of Art.  Her stylized representational figures and exuberant use of color were distinctly her own.

Living With

Dear Friends:

When I was 4 years old, my parents took me to a specialist to find out why I walked with an unusual waddle. They learned I had limb-girdle muscular dystrophy.

Mandy Van Benthuysen

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