Myotonic Chat Group

PaRay (Jan 9, 2008 8:49:56 PM)
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bette (Jan 9, 2008 8:50:23 PM)
Hi

PaRay (Jan 9, 2008 8:50:33 PM)
Hey, Bette. How are things on the west coast?

bette (Jan 9, 2008 8:50:37 PM)
Ray, How are you and Ann doing?

PaRay (Jan 9, 2008 8:50:54 PM)
Had a good day today.

bette (Jan 9, 2008 8:51:30 PM)
The west coast is beautiful today, at least in So. CA. Still a little cold but the sun was out.

PaRay (Jan 9, 2008 8:52:13 PM)
It was unseasonable warm here today. 60 something

bette (Jan 9, 2008 8:53:14 PM)
We were close, about 58-59. Out here that is cold.

PaRay (Jan 9, 2008 8:53:17 PM)
Everyone must be napping!!!!

bette (Jan 9, 2008 8:54:04 PM)
I know Marcia will not be on. She lost a cap and this was the only time that she could get an appt. with the dentist.

PaRay (Jan 9, 2008 8:54:43 PM)
Oh no. Who is going to mind the slots???

vdoman (Jan 9, 2008 8:54:58 PM)
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bette (Jan 9, 2008 8:55:11 PM)
I'm sure she has somebody on stand-by.

PaRay (Jan 9, 2008 8:55:20 PM)
An Herrrreeees VDO

vdoman (Jan 9, 2008 8:55:32 PM)
Hi Gang

bette (Jan 9, 2008 8:55:53 PM)
Hi Corey

PaRay (Jan 9, 2008 8:55:56 PM)
How was your week?

vdoman (Jan 9, 2008 8:56:05 PM)
How is our Bette, Ray and Annie

PaRay (Jan 9, 2008 8:56:28 PM)
East coast doing good.

vdoman (Jan 9, 2008 8:56:31 PM)
We had a good week

vdoman (Jan 9, 2008 8:57:52 PM)
Small group today guys and MM will not be on she is at the dentist because she broke a crown

bette (Jan 9, 2008 8:58:20 PM)
I'm doing fine. I heard a genetisis(?) speaking on Jewish genetic diseases and he was saying that of *8,000,000 Ashenasi(?) Jews in the world they can all be traced by genetically to four women.

PaRay (Jan 9, 2008 8:59:07 PM)
That is interesting. Was Eve one of them?

bette (Jan 9, 2008 8:59:18 PM)
I meant to say traced back to four women.

bette (Jan 9, 2008 8:59:36 PM)
I don't know.

LOST1112 (Jan 9, 2008 8:59:52 PM)
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LOST1112 (Jan 9, 2008 8:59:53 PM)
AM

vdoman (Jan 9, 2008 9:00:00 PM)
That is interesting Suzy was and I am ashkinazi Jew

PaRay (Jan 9, 2008 9:00:07 PM)
Hey Lost,

bette (Jan 9, 2008 9:00:10 PM)
Hi Lost.

LOST1112 (Jan 9, 2008 9:00:14 PM)
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bette (Jan 9, 2008 9:00:27 PM)
That was fast.

vdoman (Jan 9, 2008 9:00:29 PM)
Lost got lost

bette (Jan 9, 2008 9:01:38 PM)
Ray or Corey, do either of you know if you can eat the skip of an avacado?

vdoman (Jan 9, 2008 9:01:47 PM)
It would be interesting to find out how many ashkinazi jews had or have MMD

vdoman (Jan 9, 2008 9:02:11 PM)
You mean the skin no you cannot

eeyore (Jan 9, 2008 9:02:38 PM)
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bette (Jan 9, 2008 9:02:39 PM)
I don't know the amount but it is not considered a Ashkanzic Jewish genetic disease.

fluffy (Jan 9, 2008 9:02:59 PM)
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bette (Jan 9, 2008 9:02:59 PM)
Thanks corey.

fluffy (Jan 9, 2008 9:03:16 PM)
hi

PaRay (Jan 9, 2008 9:03:19 PM)
Hey Eeyore and Fluf

bette (Jan 9, 2008 9:03:27 PM)
Hi Fluffy and eeyore

eeyore (Jan 9, 2008 9:03:32 PM)
Hey everybody

shelly (Jan 9, 2008 9:03:36 PM)
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shelly (Jan 9, 2008 9:03:39 PM)
hi

eeyore (Jan 9, 2008 9:03:44 PM)
Hi

bette (Jan 9, 2008 9:03:47 PM)
Hi shelly

PaRay (Jan 9, 2008 9:03:53 PM)
Shelly tumbled in.

bette (Jan 9, 2008 9:04:01 PM)
We're fine her fluffy

vdoman (Jan 9, 2008 9:04:06 PM)
As far as they know it is not an ashkinazi disease, but they could be a hi percentage carrier

shelly (Jan 9, 2008 9:04:07 PM)
yes I did Ray!

bette (Jan 9, 2008 9:04:18 PM)
Possible.

vdoman (Jan 9, 2008 9:04:24 PM)
Hi Shelly and Eyeore

shelly (Jan 9, 2008 9:04:25 PM)
at least I didn't fall in

eeyore (Jan 9, 2008 9:04:30 PM)
Hello

PaRay (Jan 9, 2008 9:04:45 PM)
Fall OUT!!!!

shelly (Jan 9, 2008 9:04:50 PM)
almost did yesterday- caught myseld- I even had Afo's on

shelly (Jan 9, 2008 9:05:02 PM)
I got in myself

eeyore (Jan 9, 2008 9:05:05 PM)
I fell 2 days ago

shelly (Jan 9, 2008 9:05:19 PM)
this was just pure blonde clumsiness

vdoman (Jan 9, 2008 9:05:23 PM)
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fluffy (Jan 9, 2008 9:05:35 PM)
did you hurt yourself

shelly (Jan 9, 2008 9:05:41 PM)
are you okeeyore?

bette (Jan 9, 2008 9:05:53 PM)
Shelly are you really a "pure blond"

eeyore (Jan 9, 2008 9:05:57 PM)
Nor really just a rug burn and a sore shoulder

coke-mom (Jan 9, 2008 9:05:57 PM)
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shelly (Jan 9, 2008 9:06:07 PM)
nope- bottle blonde

bette (Jan 9, 2008 9:06:29 PM)
Hi coke-mom

vdoman (Jan 9, 2008 9:06:48 PM)
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coke-mom (Jan 9, 2008 9:06:48 PM)
Hi Bette hows all going?

bette (Jan 9, 2008 9:07:04 PM)
All is going well out here.

Robyn-G (Jan 9, 2008 9:07:16 PM)
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coke-mom (Jan 9, 2008 9:07:30 PM)
That's good. I have had a rough few weeks. I am glad the holidays are behind us

fluffy (Jan 9, 2008 9:07:33 PM)
hi robyn

vdoman (Jan 9, 2008 9:07:37 PM)
HI robyn

Robyn-G (Jan 9, 2008 9:07:41 PM)
Hi Fluffy

bette (Jan 9, 2008 9:07:41 PM)
Hey Robyn, glad you could make it tonight

Robyn-G (Jan 9, 2008 9:07:55 PM)
Thanks, Bette

shelly (Jan 9, 2008 9:08:09 PM)
When I was little it was strwaberry blonde and got darker as I got older

shelly (Jan 9, 2008 9:08:09 PM)
I gI've got to get it highlighted again- it hides thinning hair going lighterot to get in highlighttedI

PaRay (Jan 9, 2008 9:08:16 PM)
Hey Robyn

Robyn-G (Jan 9, 2008 9:08:24 PM)
Hey Ray

fluffy (Jan 9, 2008 9:08:29 PM)
mine too shelly

shelly (Jan 9, 2008 9:08:36 PM)
I was crying earlier about MMD

vdoman (Jan 9, 2008 9:08:38 PM)
How are Joe and the kids Robyn

Robyn-G (Jan 9, 2008 9:08:56 PM)
Thanks for asking, Corey. Joe got fitted for a scooter last Friday

coke-mom (Jan 9, 2008 9:09:04 PM)
Shelly I am so sorry, but I totally understand. Are you better now?

bette (Jan 9, 2008 9:09:06 PM)
Anything specific

shelly (Jan 9, 2008 9:09:11 PM)
saying "I didn't sign up for this s" and it really go to me

Robyn-G (Jan 9, 2008 9:09:29 PM)
yeah, shelly....i imagine that has got to be frustrating

Robyn-G (Jan 9, 2008 9:09:50 PM)
Janelle goes in for her physical evaluation for disability tomorrow afternoon

coke-mom (Jan 9, 2008 9:09:51 PM)
WE all understand that. I am just the caregiver and it is a mess. I couldn;t imagine having the disease.

shelly (Jan 9, 2008 9:10:10 PM)
everyone now and then it gets me down

vdoman (Jan 9, 2008 9:10:22 PM)
This is a s------ disease I hate what it is doing and did to my family

Robyn-G (Jan 9, 2008 9:10:24 PM)
coke-mom, i don't remember what your situation is, can you remind me please?

shelly (Jan 9, 2008 9:10:46 PM)
I function well day-to day-but get really overwhelmed sometimes

bette (Jan 9, 2008 9:11:00 PM)
Yes Shelly, we do all go through it . You are not alone. Feel free to call if you ever need to talk (818 980-4315

shelly (Jan 9, 2008 9:11:30 PM)
thanks bette I will call you

coke-mom (Jan 9, 2008 9:11:30 PM)
Yes my Husband is Steve 46 he was diagnosed in 1993. My 17 yr old son and 20 yr old daughter have mmd. My son is the ine with all the learning and bowel problems.

eeyore (Jan 9, 2008 9:11:43 PM)
I have been turned down for my second appeal as dec 27

eeyore (Jan 9, 2008 9:11:50 PM)
for SSD

coke-mom (Jan 9, 2008 9:11:54 PM)
Shelly or anyone can also call me when they need to talk. 214 908 8479

fluffy (Jan 9, 2008 9:12:01 PM)
I'm going on a choir retreat this weekend from Friday till Sunday afternoon

shelly (Jan 9, 2008 9:12:02 PM)
wow- coke-mom- how are you dealing?

bette (Jan 9, 2008 9:12:05 PM)
EEyor, I'm so sorry.

eeyore (Jan 9, 2008 9:12:31 PM)
Thankyou but my lawyer is working on it

Robyn-G (Jan 9, 2008 9:12:55 PM)
thanks coke-mom, that sounds like us, or pretty close, joe is 41, our girls are 15 and 12, our younger has the most learning problems

coke-mom (Jan 9, 2008 9:12:55 PM)
It has been difficult at times but some one has to do it

Robyn-G (Jan 9, 2008 9:13:15 PM)
eeyore - i'm sorry to hear that. i don't get why mmd is not a given on the disability list

coke-mom (Jan 9, 2008 9:13:22 PM)
Robyn do your kids have teh bowel issues?

eeyore (Jan 9, 2008 9:13:24 PM)
now I have to get a job to pay child support not going well

Robyn-G (Jan 9, 2008 9:13:32 PM)
joe got approved the first time, so did jessica

fluffy (Jan 9, 2008 9:13:45 PM)
so did I

shelly (Jan 9, 2008 9:13:46 PM)
I have problems sometimes-but try to keep it under control

Robyn-G (Jan 9, 2008 9:13:51 PM)
thankfully, no they don't have those problems

coke-mom (Jan 9, 2008 9:13:55 PM)
EEyore don't be discourged. Steve had to appeal twice before his was granted.

eeyore (Jan 9, 2008 9:13:58 PM)
they said I can do the job i'm trained to do

Robyn-G (Jan 9, 2008 9:14:11 PM)
yeah, but they don't live in your body

coke-mom (Jan 9, 2008 9:14:23 PM)
Robyn that's great. Daniel's is getting better with the Mexiletine.

bette (Jan 9, 2008 9:14:32 PM)
It sook me two times also but on the second try I had my drs. write notes emphasising what I couldn't do and it worked.

shelly (Jan 9, 2008 9:14:33 PM)
My little nephew has had terrible bowel issues-IBS

coke-mom (Jan 9, 2008 9:14:44 PM)
Sheely,

vdoman (Jan 9, 2008 9:14:53 PM)
I know how you feel Coke-mom I delt with my wife being wheelchair bound for 7 years and also dealing with my son who has CMMD

coke-mom (Jan 9, 2008 9:15:35 PM)
Shelly anytime you need to talk call me. Daniel has been struggling with them since he was 8. It does get better.

eeyore (Jan 9, 2008 9:15:36 PM)
I'm a nurse cant lift and can't think ell enough to give 60 people drugs I get confused and headaches and the med cart is to heavy and then I fall

shelly (Jan 9, 2008 9:15:49 PM)
man

beth (Jan 9, 2008 9:15:52 PM)
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eeyore (Jan 9, 2008 9:15:55 PM)
yeah

Robyn-G (Jan 9, 2008 9:16:04 PM)
that's dangerous eeyore..i can't believe they're that inept at finding you disabled

coke-mom (Jan 9, 2008 9:16:17 PM)
Vdoman hows it going with your family.

fluffy (Jan 9, 2008 9:16:19 PM)
I e-maijed Suzette last week Billy Dean is having alot of problems and that is why she hasn't been on

bette (Jan 9, 2008 9:16:31 PM)
Coke-mom I have difficulty with bowels also. I use a glass of prune juice and a stool softener with laxative to help me.

eeyore (Jan 9, 2008 9:16:31 PM)
Last time I fell I was on workman comp for 8weeks

barryc (Jan 9, 2008 9:16:47 PM)
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shelly (Jan 9, 2008 9:16:56 PM)
I know what foods to avoid-onion, BK onion rings and I'm ok bowel wise

beth (Jan 9, 2008 9:17:01 PM)
hi all

PaRay (Jan 9, 2008 9:17:06 PM)
Suzette ask me to tell you that BillyDean is in the hospital with breathing issues.

eeyore (Jan 9, 2008 9:17:09 PM)
hey

fluffy (Jan 9, 2008 9:17:13 PM)
hi barry

vdoman (Jan 9, 2008 9:17:14 PM)
I am doing ok dealing with my son now and his issues

shelly (Jan 9, 2008 9:17:26 PM)
hi Barry!

vdoman (Jan 9, 2008 9:17:29 PM)
Hi Barry

shelly (Jan 9, 2008 9:17:37 PM)
Enjoying the book!

beth (Jan 9, 2008 9:17:38 PM)
i wont be here long

coke-mom (Jan 9, 2008 9:17:48 PM)
Bette I am sorry. It is really difficult. have you tried Miralax or Mexiletine?

barryc (Jan 9, 2008 9:18:08 PM)
sorry to hear about Billy Dean! Hi Shelly and Corey and Fluffly... et al. Shelly, I talked to Mike a few days ago. We will talk again after rea

coke-mom (Jan 9, 2008 9:18:11 PM)
Vdoman remind me what is your son

eeyore (Jan 9, 2008 9:18:16 PM)
I dont have boweel control issues but I get stomach aches daily for a while it got so bad I lost 20 lbs but got to say I'm walking better

barryc (Jan 9, 2008 9:18:17 PM)
after he reads Terry's book

shelly (Jan 9, 2008 9:18:26 PM)
I am trying to listen to inspirational Music-I have on "Fighter" by Christina Aguilera

vdoman (Jan 9, 2008 9:18:41 PM)
My son is Kevin he is 25 and has CMMD

shelly (Jan 9, 2008 9:18:58 PM)
How was it talking to my uncle

barryc (Jan 9, 2008 9:18:59 PM)
Mrs Oregon... how are you Robin? How is the family?

coke-mom (Jan 9, 2008 9:19:04 PM)
eeyore my daughter has been losing weight too. Almost 10 pounds a month. They have put her on ensure

shelly (Jan 9, 2008 9:19:18 PM)
? Barry

barryc (Jan 9, 2008 9:19:26 PM)
she Shelly

barryc (Jan 9, 2008 9:19:29 PM)
y

bette (Jan 9, 2008 9:19:30 PM)
No coke-mom, I really don't want to go on anything else. If I don't make for more than a day my husband helps by pulling out the hard stuff.

barryc (Jan 9, 2008 9:19:30 PM)
y

coke-mom (Jan 9, 2008 9:19:32 PM)
Vdoman That;s right. Is he dong ok now.

barryc (Jan 9, 2008 9:19:32 PM)
y

beth (Jan 9, 2008 9:19:42 PM)
i wish i cpuld lose some weight

eeyore (Jan 9, 2008 9:19:42 PM)
is she eating I quit because I was tired of being sick all the time

coke-mom (Jan 9, 2008 9:19:45 PM)
Bette I understand

barryc (Jan 9, 2008 9:19:48 PM)
yes, Shelly.. julie;s computer is such a drag

coke-mom (Jan 9, 2008 9:19:51 PM)
Me too Beth

vdoman (Jan 9, 2008 9:19:51 PM)
Yes

shelly (Jan 9, 2008 9:20:19 PM)
how did it go Barry?

coke-mom (Jan 9, 2008 9:20:26 PM)
eeyore Yes but she is nauseated alot also. They have her on all kinds of nausea drugs

fluffy (Jan 9, 2008 9:20:48 PM)
I could stand to lose about 20 pounds

shelly (Jan 9, 2008 9:20:51 PM)
-Phenergen is the worst- so sedating

vdoman (Jan 9, 2008 9:20:59 PM)
Where are you at Coke-mom

eeyore (Jan 9, 2008 9:21:06 PM)
I'd been trying the traditional way but I always give up when it doesn't work this was not my diet of choice

shelly (Jan 9, 2008 9:21:10 PM)
Zofran isgreat, but $$$$$

barryc (Jan 9, 2008 9:21:11 PM)
MIke talked and talked about his ailments... I did tell him a little about our situation and even gave him some tips I got from a swallowing specialist.

coke-mom (Jan 9, 2008 9:21:16 PM)
Im in Dallas Tx

shelly (Jan 9, 2008 9:21:33 PM)
that's great Barry

coke-mom (Jan 9, 2008 9:21:47 PM)
My daughter is taking Zofran but it gives her a headache

eeyore (Jan 9, 2008 9:21:55 PM)
Zofran is a diet drug

beth (Jan 9, 2008 9:22:02 PM)
coke mom i live two hours east of Dallas

barryc (Jan 9, 2008 9:22:13 PM)
shelly, I did not realize how many people in your family have MMD... almost enough to have a support group!

shelly (Jan 9, 2008 9:22:16 PM)
He is such a kind man and I think he needs to talk to others who live with this

shelly (Jan 9, 2008 9:22:28 PM)
I know Barry- it's a lot

coke-mom (Jan 9, 2008 9:22:36 PM)
She takes it for Nausea, but has stopped now. They took several tubes of blood today.

shelly (Jan 9, 2008 9:22:55 PM)
When I registered at Rochester- I'm sure they saw my maiden name and knew what family it was

barryc (Jan 9, 2008 9:22:56 PM)
shelly, wait until he talks to Julie... then I think I won't get a word in... and I am not bashful!

eeyore (Jan 9, 2008 9:23:01 PM)
I've taken that its great

barryc (Jan 9, 2008 9:23:16 PM)
Earth to Robin... how you doing?

shelly (Jan 9, 2008 9:23:21 PM)
I'm so glad

Robyn-G (Jan 9, 2008 9:23:32 PM)
oh, sorry Barry..I'm here

Robyn-G (Jan 9, 2008 9:23:37 PM)
I'm doing ok

Robyn-G (Jan 9, 2008 9:23:55 PM)
just got joe fitted for a scooter and ordered a headmaster cervical collar

barryc (Jan 9, 2008 9:23:55 PM)
How does Zolfran work as a diet pill? And what are its downsides?

coke-mom (Jan 9, 2008 9:24:00 PM)
Has anyone heard from Ann or Sheila

coke-mom (Jan 9, 2008 9:24:18 PM)
I am not sure but I can read some of thre literature

bette (Jan 9, 2008 9:24:20 PM)
Corey, are you and Kevin coming down for the next support group meeting in so. ca.

barryc (Jan 9, 2008 9:24:28 PM)
I think Joe will zoom with a scooter... motorcycle man!

eeyore (Jan 9, 2008 9:24:29 PM)
I t doesn't I was confused

shelly (Jan 9, 2008 9:24:31 PM)
WE've got a lot of people who have MMD in my family-all of varying degrees-our grandfather who had it from his Mom, lived to be 93!

Robyn-G (Jan 9, 2008 9:24:38 PM)
ooh...i hope not

coke-mom (Jan 9, 2008 9:24:40 PM)
ok

Robyn-G (Jan 9, 2008 9:24:55 PM)
wow..shelly..there's some longevity

shelly (Jan 9, 2008 9:24:58 PM)
Zofrna is an anti-nausea med that is sometimes prescribed for people on chemo

coke-mom (Jan 9, 2008 9:25:11 PM)
That sounds better.

barryc (Jan 9, 2008 9:25:19 PM)
shelly, I think Julie's mom has MMD (my best guess)... she is 97 and still kicking... and boy does she have a kick.

vdoman (Jan 9, 2008 9:25:22 PM)
Bette not this month it is on a Sat and hard for me to get off work

shelly (Jan 9, 2008 9:25:34 PM)
lol Barry

bette (Jan 9, 2008 9:25:57 PM)
Ok corey, we will miss you.

coke-mom (Jan 9, 2008 9:25:59 PM)
Steve's mother is in her 70's and has MMD but Steve may not make it to 50 because of the breathing issues

barryc (Jan 9, 2008 9:26:03 PM)
bette... terry is flying out to CA and staying with the Bades next week... will be at the support meeting.

Robyn-G (Jan 9, 2008 9:26:34 PM)
that's a harsh reality, isn't it coke-mom?

fluffy (Jan 9, 2008 9:26:38 PM)
My church got robbed today fortunately they only got a bike and a computer

bette (Jan 9, 2008 9:26:40 PM)
Barry, Alice told me about Terry.

coke-mom (Jan 9, 2008 9:26:45 PM)
I wish we were close enough to attend some of the meetings

Robyn-G (Jan 9, 2008 9:26:48 PM)
kind of makes planning for the future difficult

coke-mom (Jan 9, 2008 9:27:00 PM)
What about Terry

bette (Jan 9, 2008 9:27:00 PM)
Me too coke-mom

Robyn-G (Jan 9, 2008 9:27:07 PM)
Bette- I think you might like the headmaster cervical collar

eeyore (Jan 9, 2008 9:27:09 PM)
me too

coke-mom (Jan 9, 2008 9:27:09 PM)
Bette Where are you

barryc (Jan 9, 2008 9:27:17 PM)
how can somone rob from a church! Egregious.

beth (Jan 9, 2008 9:27:25 PM)
i am doing to leave now i just thought i would say hi since i missed the last two weeks

coke-mom (Jan 9, 2008 9:27:36 PM)
Bye Beth later

eeyore (Jan 9, 2008 9:27:39 PM)
bye

barryc (Jan 9, 2008 9:27:41 PM)
Bette is in CA ...LA... but she is widely know throughout CA.

shelly (Jan 9, 2008 9:27:44 PM)
My grandfather was a pilot- he had met Amelia Earhart, Charles Lindberg, the Wright Brothers. He flew for Capitol-United Airlines until 60. My dad got him a job flying chaters-thought he'd do it for a few years. FLEW until he was 80!!!!

fluffy (Jan 9, 2008 9:27:44 PM)
bye beth

vdoman (Jan 9, 2008 9:27:45 PM)
Bye Beth

bette (Jan 9, 2008 9:27:51 PM)
coke-mom I'm in Valley Village, s sub-burb of Los Angeles Ca.

coke-mom (Jan 9, 2008 9:28:13 PM)
Oh you are closer than me.

Robyn-G (Jan 9, 2008 9:28:15 PM)
Bye beth

barryc (Jan 9, 2008 9:28:17 PM)
coooool shelly... I bet Amelia was quite a lady... wish I knew her.

shelly (Jan 9, 2008 9:28:31 PM)
She is one of my heroes

coke-mom (Jan 9, 2008 9:28:34 PM)
Shely that is really cool

bette (Jan 9, 2008 9:28:44 PM)
The question is how am I known all over CA?

coke-mom (Jan 9, 2008 9:28:52 PM)
lol

shelly (Jan 9, 2008 9:28:58 PM)
he was sooooo cool and loved aviation

vdoman (Jan 9, 2008 9:29:01 PM)
I always admired Amelia Earhart

beth (Jan 9, 2008 9:29:05 PM)
bye eveyone

coke-mom (Jan 9, 2008 9:29:06 PM)
Me too

barryc (Jan 9, 2008 9:29:18 PM)
a slick cookie with a great sense of humor... bette the first.

fluffy (Jan 9, 2008 9:29:36 PM)
has anyone talked to mm this week?

shelly (Jan 9, 2008 9:29:50 PM)
and the weather! If you remember, my husband is a meteorologist. If Pos had been up to it, he would have kidnapped my husband for 2 days to talk about the weather

coke-mom (Jan 9, 2008 9:29:55 PM)
What about Alice and Terry

beth (Jan 9, 2008 9:30:01 PM)
barry tell julie and terry hi for me

bette (Jan 9, 2008 9:30:29 PM)
Thanks Barry.

vdoman (Jan 9, 2008 9:30:30 PM)
Bette Lisa and I know you and MM sister knows that is all over Calif

Robyn-G (Jan 9, 2008 9:30:30 PM)
bette - did you hear what i said about the collar?

coke-mom (Jan 9, 2008 9:30:58 PM)
Robyn My mother in law needs that collar what is it called again?

barryc (Jan 9, 2008 9:31:01 PM)
I am really on an upbeat... I got my mom a caregiver and she is happy with her (has dementia)... finally got a reasonable schedule for our daffy caregiver for Julie and Terry (terry loves her)... and now I am intreviewing another caregiver to cook for us (I HATE COOKING) and stay over so I can finally do some fun trips for myself....

bette (Jan 9, 2008 9:31:04 PM)
Yes Robyn, let me know how it works for Joe when it yet it.

vdoman (Jan 9, 2008 9:31:05 PM)
MM is at the dentist today

beth (Jan 9, 2008 9:31:38 PM)
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coke-mom (Jan 9, 2008 9:31:39 PM)
Barry That sounds great

shelly (Jan 9, 2008 9:31:49 PM)
I'm happy for you Barry

barryc (Jan 9, 2008 9:31:54 PM)
Marcia is at the dentist because she got belted at Vegas slots, and now needs dental work.

barryc (Jan 9, 2008 9:32:07 PM)
thanx coke mom and shelly....

coke-mom (Jan 9, 2008 9:32:07 PM)
Oh no that sounds bad

vdoman (Jan 9, 2008 9:32:14 PM)
No MM lost a crown today

Robyn-G (Jan 9, 2008 9:32:19 PM)
ok bette, will do. what we like about it is that it doesn't cover the front of your neck, it is open. and you can adjust it to fit you.

barryc (Jan 9, 2008 9:32:32 PM)
just kidding mm, coke mom... I can be goofy sometimes.

shelly (Jan 9, 2008 9:32:50 PM)
I'm going to go cuddle on my husband

coke-mom (Jan 9, 2008 9:32:57 PM)
Goofy is good at times it relieves some of the stress

barryc (Jan 9, 2008 9:33:00 PM)
happy cuddling.

shelly (Jan 9, 2008 9:33:06 PM)
I need it and I hope he's up for it

coke-mom (Jan 9, 2008 9:33:08 PM)
Happy cuddling

eeyore (Jan 9, 2008 9:33:12 PM)
I'm jealous

coke-mom (Jan 9, 2008 9:33:21 PM)
They are always up for it aren't they

shelly (Jan 9, 2008 9:33:27 PM)
thx- Talk to you all next week

fluffy (Jan 9, 2008 9:33:29 PM)
no

coke-mom (Jan 9, 2008 9:33:32 PM)
By shelly

barryc (Jan 9, 2008 9:33:38 PM)
shelly if he is not up to it, tell him you are going to tell EVERYONE on the chat line he disappointed you.

shelly (Jan 9, 2008 9:33:41 PM)
he needs to be up for it- I need it

fluffy (Jan 9, 2008 9:33:43 PM)
bye shelly

eeyore (Jan 9, 2008 9:33:46 PM)
I have snagged a boy friend but he live 3hours away

shelly (Jan 9, 2008 9:33:53 PM)
lol-barry

shelly (Jan 9, 2008 9:33:56 PM)
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coke-mom (Jan 9, 2008 9:33:57 PM)
eeyore that's too far

eeyore (Jan 9, 2008 9:34:14 PM)
I know but he's a doll

coke-mom (Jan 9, 2008 9:34:27 PM)
ok maybe he's worth it then.

vdoman (Jan 9, 2008 9:34:34 PM)
Kev and I need to go to dinner take care everyone

eeyore (Jan 9, 2008 9:34:42 PM)
we'll see he's still in training

fluffy (Jan 9, 2008 9:34:47 PM)
bye vdoman

coke-mom (Jan 9, 2008 9:34:48 PM)
Vdoman bye and be careful

barryc (Jan 9, 2008 9:35:00 PM)
what is 3 hrs when boyfriend's are out there! Terry has friends in CT, CA, and FL...and I am glad for him.

vdoman (Jan 9, 2008 9:35:11 PM)
Take care eveyone

coke-mom (Jan 9, 2008 9:35:14 PM)
thta's true

vdoman (Jan 9, 2008 9:35:23 PM)
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iris1 (Jan 9, 2008 9:36:08 PM)
(This user has entered Myotonic Chat Group)

coke-mom (Jan 9, 2008 9:36:14 PM)
How is everyone tonight

eeyore (Jan 9, 2008 9:36:16 PM)
I wasn't looking Imet him at a bar when I was in east tn visiting my son

barryc (Jan 9, 2008 9:36:17 PM)
ray.. what is new in cold, snowy, and foggy PA land? Are you getting ready for the Primaries? I hope you are voting for the right person.

fluffy (Jan 9, 2008 9:36:17 PM)
hi irts

coke-mom (Jan 9, 2008 9:36:30 PM)
Hi iris

bette (Jan 9, 2008 9:36:39 PM)
Eeyore, Mark and I have been married 37 years and he is still in training.

iris1 (Jan 9, 2008 9:36:45 PM)
Good Evening everyone.

coke-mom (Jan 9, 2008 9:36:56 PM)
eeyore that's always when u find them

barryc (Jan 9, 2008 9:37:00 PM)
Julie says I need training daily.

coke-mom (Jan 9, 2008 9:37:19 PM)
Steve does too and we have been married 25 years

PaRay (Jan 9, 2008 9:37:20 PM)
Barry...We are have spring. In the 60s today.

eeyore (Jan 9, 2008 9:37:38 PM)
Im teaching to lie about angelina jolie and Cathrin Zeta jones being prettier than me isn;t that a given

iris1 (Jan 9, 2008 9:37:41 PM)
it was 75 deg. here yesterday

coke-mom (Jan 9, 2008 9:37:42 PM)
I love that kind of weather

barryc (Jan 9, 2008 9:37:43 PM)
go way,Ray... 60's ... you should be going swimming.

barryc (Jan 9, 2008 9:38:08 PM)
iris.. where do you live?

PaRay (Jan 9, 2008 9:38:11 PM)
Short sleeves

eeyore (Jan 9, 2008 9:38:12 PM)
we had 70's here

coke-mom (Jan 9, 2008 9:38:14 PM)
No one is prettier than us real people

bette (Jan 9, 2008 9:38:25 PM)
I've given up on that one Eeupre/

barryc (Jan 9, 2008 9:38:38 PM)
I like unreal people, too.. you know the CA types.

coke-mom (Jan 9, 2008 9:38:51 PM)
Tht's ok too Barry

bette (Jan 9, 2008 9:38:57 PM)
Where do you live Iris.

iris1 (Jan 9, 2008 9:39:31 PM)
I live 60 miles North of New Orleans in South Louisiana

barryc (Jan 9, 2008 9:39:31 PM)
for 64K, where does Iris live????

bette (Jan 9, 2008 9:39:38 PM)
OOOO Barry, what a welcome your going to get.

coke-mom (Jan 9, 2008 9:39:42 PM)
Funny barry

Robyn-G (Jan 9, 2008 9:39:58 PM)
gotta go guys. see you online next week, hopefully.

fluffy (Jan 9, 2008 9:40:01 PM)
we had 60s monday and tuesday and 40 wednesday

coke-mom (Jan 9, 2008 9:40:06 PM)
Bye Robyn

eeyore (Jan 9, 2008 9:40:08 PM)
bye

Robyn-G (Jan 9, 2008 9:40:11 PM)
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coke-mom (Jan 9, 2008 9:40:21 PM)
We have had 60's to 40's this week abd I love it

bette (Jan 9, 2008 9:40:45 PM)
We had about 58 today. It's supposed to get warmer tomorrow and they say we'll be in the 70th for the weekend

barryc (Jan 9, 2008 9:40:45 PM)
iris... you are a coon a... right? LSU played a great football game! We lived in Pensacola FL for a number of years, and went over to New Orleans for fun, and more fun... love the Jazz there.

bette (Jan 9, 2008 9:41:35 PM)
That should read 70's

fluffy (Jan 9, 2008 9:41:40 PM)
I'm getting tired I'll talk yo you all next week

coke-mom (Jan 9, 2008 9:41:43 PM)
That all good bette

iris1 (Jan 9, 2008 9:41:50 PM)
Barry, No I am not a coon a...., I am a transplant from Georgia

eeyore (Jan 9, 2008 9:41:53 PM)
good night

coke-mom (Jan 9, 2008 9:42:06 PM)
Bye eeyore

PaRay (Jan 9, 2008 9:42:14 PM)
Georgia Cracker???

eeyore (Jan 9, 2008 9:42:21 PM)
I was saying byr to fluffy

barryc (Jan 9, 2008 9:42:22 PM)
so iris, you are a bull dog! where did you live in GA land?

coke-mom (Jan 9, 2008 9:42:28 PM)
oh sorry

eeyore (Jan 9, 2008 9:42:34 PM)
OK

fluffy (Jan 9, 2008 9:43:03 PM)
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iris1 (Jan 9, 2008 9:43:23 PM)
Norcross, Decatur, around the Metro of Atlanta

barryc (Jan 9, 2008 9:43:25 PM)
iris, my daughter went to school in Auburn... traveled to Atlanta often to kick up her heals.

coke-mom (Jan 9, 2008 9:43:28 PM)
eeyore are you the only one in your family with MMD

eeyore (Jan 9, 2008 9:43:49 PM)
yes

coke-mom (Jan 9, 2008 9:44:00 PM)
That must be rough

iris1 (Jan 9, 2008 9:44:06 PM)
I have been in Louisiana for 24 years now.

barryc (Jan 9, 2008 9:44:06 PM)
iris,,, I did consulting for Coke in Atlanta... so do I qualify as a GA peach?

eeyore (Jan 9, 2008 9:44:13 PM)
Parents ,sister,and son all tested neg

coke-mom (Jan 9, 2008 9:44:30 PM)
Eeyore that;s very unusual

iris1 (Jan 9, 2008 9:44:42 PM)
yes, you would be a GA peach.

eeyore (Jan 9, 2008 9:44:45 PM)
Thats what my doctors tell me

PaRay (Jan 9, 2008 9:45:18 PM)
Iris... My wife was born in Porterdale. Know where it is??

coke-mom (Jan 9, 2008 9:45:24 PM)
Once Steve was diagnosed that's when we had everyone tested and it is all over his family

barryc (Jan 9, 2008 9:45:26 PM)
actually iris, I am a FL transplant (like most of us here)... grew up in NYC and did not set foot in the south until grad school (age 22)

coke-mom (Jan 9, 2008 9:45:49 PM)
What;s wrong with the south Barry

eeyore (Jan 9, 2008 9:46:19 PM)
I am a transplant from Ohio havebeen here (in TN) for 27 years and they still call me a Yankee

barryc (Jan 9, 2008 9:46:33 PM)
I lived in the south for more than 40 years, and my wife is an avid Tenn football fan... besides I love the weather

iris1 (Jan 9, 2008 9:46:34 PM)
Not sure where Porterdale is.

eeyore (Jan 9, 2008 9:46:35 PM)
Still hav that accent

coke-mom (Jan 9, 2008 9:46:38 PM)
I am a Texan born and bred.

PaRay (Jan 9, 2008 9:46:54 PM)
Iris...Covington??

barryc (Jan 9, 2008 9:46:56 PM)
eeyore.. where in TN?

eeyore (Jan 9, 2008 9:47:13 PM)
My parents lived there acouple years couldn't get used to it

bette (Jan 9, 2008 9:47:36 PM)
I'm a native Californian. Unusual at the time but as more people are born here it is no longer that unusual..

barryc (Jan 9, 2008 9:47:47 PM)
about all I can say about Texas, is I love the two step and jumping around the dance floor.... funny, when I was doing consulting in Houston, most of my clients were northerners.

iris1 (Jan 9, 2008 9:48:02 PM)
Now I remember where Porterdale is. Thanks

eeyore (Jan 9, 2008 9:48:09 PM)
I'm from east tn Knoxville are Iam temporarly living with my parents waiting for my disabily in the Nashville area

barryc (Jan 9, 2008 9:48:11 PM)
told you bette was widely known in CA land... better known than Arnold S... a native!

iris1 (Jan 9, 2008 9:49:06 PM)
Where are Shelly, and Marica tonight

coke-mom (Jan 9, 2008 9:49:07 PM)
I love the Two Step too Barry, But Metal Music is better.

barryc (Jan 9, 2008 9:49:15 PM)
julie (who has MMD) and me... we lived in Knoxville and both did grad training at UT. Loved it. Lived in student housing and our electric bill from TVA was $ 30 mo.

eeyore (Jan 9, 2008 9:49:22 PM)
I cant jump or two step nut when I go home I hang out at the electric cowboy and watch others

bette (Jan 9, 2008 9:49:25 PM)
I should only have his clout and his money.

barryc (Jan 9, 2008 9:49:48 PM)
I think Julie is a cowgirl at heart.

eeyore (Jan 9, 2008 9:49:55 PM)
Coke-mon metal who

coke-mom (Jan 9, 2008 9:50:18 PM)
most of it from Poison to Korn, to Ozzy

barryc (Jan 9, 2008 9:50:22 PM)
better than his clout and money is the moxy you have... I would take you for gov, Bette, before Arnie.

bette (Jan 9, 2008 9:50:23 PM)
Iris, Shelly was on earlier and Marcia had to go to the dentist.

eeyore (Jan 9, 2008 9:50:29 PM)
Ive seen poison

eeyore (Jan 9, 2008 9:50:45 PM)
excellent show saw them twice

coke-mom (Jan 9, 2008 9:50:46 PM)
Oh i bet that was cOOL

eeyore (Jan 9, 2008 9:51:03 PM)
great ever go to concerts?

coke-mom (Jan 9, 2008 9:51:06 PM)
I have only seen Led Zeppelin and Wgitesnake

iris1 (Jan 9, 2008 9:51:17 PM)
Thanks Bette. I came on late so I missed lots tonight. Did everyone get their Quest this week?

coke-mom (Jan 9, 2008 9:51:20 PM)
When I was younger. But not lately

coke-mom (Jan 9, 2008 9:51:41 PM)
I did I love that magazine

barryc (Jan 9, 2008 9:51:45 PM)
yes, got Quest. Have not read it yet.

bette (Jan 9, 2008 9:51:46 PM)
If someone whould pay for my campaign I'm willing to run. I like Sacramento.

coke-mom (Jan 9, 2008 9:52:07 PM)
Ok Bette lets raise money for Bette;s campaign? LOL

bette (Jan 9, 2008 9:52:23 PM)
I don't think I've gotten my Quest yet.

eeyore (Jan 9, 2008 9:52:32 PM)
I saw white snake I used to see everybody van halen Bon JOvi chicago def leopard Aero smith and Kiss my personal favorites

barryc (Jan 9, 2008 9:52:49 PM)
how much of a contribution do I need to make? Bette for GOV... OUT with ARnie,,, Bette for CHANGE (now is that not trite?)

coke-mom (Jan 9, 2008 9:52:51 PM)
Wow I need to hang with you

PaRay (Jan 9, 2008 9:53:24 PM)
Bette...The check is in the mail!

eeyore (Jan 9, 2008 9:53:37 PM)
Anytime saw bob seger recently

barryc (Jan 9, 2008 9:53:39 PM)
bette, your first political platform needs to be putting a state contriution for MMD!

eeyore (Jan 9, 2008 9:54:00 PM)
My sons first concert

coke-mom (Jan 9, 2008 9:54:02 PM)
Gotta go guys. Checking on Steve and his Bi pap machine. Bette for GOV

barryc (Jan 9, 2008 9:54:11 PM)
if Ray is contributing, so am I!

eeyore (Jan 9, 2008 9:54:16 PM)
bye cok-mom

coke-mom (Jan 9, 2008 9:54:41 PM)
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barryc (Jan 9, 2008 9:55:10 PM)
Obama for vice president.... Bette for President... you an run the country from Sacremento. And Marcia Strauss can be your political campaign manager.

bette (Jan 9, 2008 9:55:17 PM)
You've got that one Barry. Mark said we should call it the MMD party.

barryc (Jan 9, 2008 9:56:01 PM)
I think the MMD party is coooooool..... you would win! And Mark can join your campaign and go out for votes for you, Bette.

eeyore (Jan 9, 2008 9:56:34 PM)
I'd vote

PaRay (Jan 9, 2008 9:56:41 PM)
For the amount of campaign money being spent, MMD could be history.

eeyore (Jan 9, 2008 9:56:58 PM)
I agree

barryc (Jan 9, 2008 9:57:03 PM)
RAY... you are sooooo right! What a waste.

bette (Jan 9, 2008 9:57:29 PM)
I agree too Ray

eeyore (Jan 9, 2008 9:57:57 PM)
But I think it wont be long they will find a cure

eeyore (Jan 9, 2008 9:58:14 PM)
they are working on it

bette (Jan 9, 2008 9:58:21 PM)
From your mouth to god's ears.

barryc (Jan 9, 2008 9:58:28 PM)
Bette for President. Mark for campaign manager. Marcia for addicted gambler. Ray for treasurer and all the $ he can get from feds.

eeyore (Jan 9, 2008 9:59:03 PM)
LOL

bette (Jan 9, 2008 9:59:15 PM)
Add Alice for fund-rasing and secretary.

barryc (Jan 9, 2008 9:59:22 PM)
omen.

iris1 (Jan 9, 2008 9:59:40 PM)
My husband has out lived everyone in his family that has had MMD and I told him that the CURE will be soon.

bette (Jan 9, 2008 9:59:55 PM)
Also Diane B for medical supervisor and Dr. Thorton and Moxley for Medical research.

eeyore (Jan 9, 2008 10:00:00 PM)
yes

barryc (Jan 9, 2008 10:00:33 PM)
ok bette. your the boss ... whoever you want for whatever position you want... just bring in the $ for MMD

bette (Jan 9, 2008 10:00:34 PM)
Hey, this is fun

PaRay (Jan 9, 2008 10:00:34 PM)
Alice needs a day joob too.

barryc (Jan 9, 2008 10:01:20 PM)
Alice needs a political job.. that woman can convince about everyone to everything and bring in the bacon.

bette (Jan 9, 2008 10:01:23 PM)
Ray, I thin that one is called running her business.

eeyore (Jan 9, 2008 10:01:49 PM)
gotta go bye

eeyore (Jan 9, 2008 10:01:52 PM)
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iris1 (Jan 9, 2008 10:02:00 PM)
Good Evening everyone. Have a good week.

iris1 (Jan 9, 2008 10:02:02 PM)
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barryc (Jan 9, 2008 10:02:06 PM)
Bette and Alice would be a dynamic duo for CA top jobs....

PaRay (Jan 9, 2008 10:02:18 PM)
Bette...Just in this fantasy land.

barryc (Jan 9, 2008 10:02:38 PM)
time to say nighty night... hope Billy Dean gets home from the hospital soon. He is such a nice boy.

barryc (Jan 9, 2008 10:02:45 PM)
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PaRay (Jan 9, 2008 10:04:06 PM)
Bette... Looks like just us chickens left.

bette (Jan 9, 2008 10:05:12 PM)
PaRay, it lloks like it's filo, first one in last one out. Good Night, give our love to Ann. Hope you see you next week.

bette (Jan 9, 2008 10:05:19 PM)
Good night.

bette (Jan 9, 2008 10:05:26 PM)
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PaRay (Jan 9, 2008 10:05:30 PM)
(This user has left DigiChat)