DMD Parent Chat

anna (Jul 1, 2010 7:45:28 PM)
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twinglema (Jul 1, 2010 7:45:47 PM)
(This user has entered DMD Parent Chat)

twinglema (Jul 1, 2010 7:45:52 PM)
hi anna

anna (Jul 1, 2010 7:46:00 PM)
Hi K

twinglema (Jul 1, 2010 7:46:10 PM)
another hot day here

twinglema (Jul 1, 2010 7:46:16 PM)
how are you?

anna (Jul 1, 2010 7:46:17 PM)
read about your bad week so far

twinglema (Jul 1, 2010 7:46:23 PM)
yeah.

twinglema (Jul 1, 2010 7:46:31 PM)
she is not the easiest patient

anna (Jul 1, 2010 7:46:34 PM)
don't ask!!!! how is daughter?

twinglema (Jul 1, 2010 7:46:48 PM)
on crutches and a brace but ok

twinglema (Jul 1, 2010 7:46:55 PM)
what happened this week?

anna (Jul 1, 2010 7:47:00 PM)
ok, guess that is lucky

twinglema (Jul 1, 2010 7:47:17 PM)
she is having 3 girls over tonight. were gonna swimm but.....

anna (Jul 1, 2010 7:47:18 PM)
car broke down again--in shop today and tomorrow.

twinglema (Jul 1, 2010 7:47:22 PM)
oh no

twinglema (Jul 1, 2010 7:47:36 PM)
where were you?

anna (Jul 1, 2010 7:47:42 PM)
R and I had planned a musuem trip since it was First Thursday and all museums free

anna (Jul 1, 2010 7:47:56 PM)
well, luckily stuck at home

twinglema (Jul 1, 2010 7:47:57 PM)
was he in the car?

twinglema (Jul 1, 2010 7:48:17 PM)
well at least you werent out on freeway

anna (Jul 1, 2010 7:48:20 PM)
then mechanic made me mad and I had to de-fault to "I'll have my husband call you"

twinglema (Jul 1, 2010 7:48:27 PM)
rats

twinglema (Jul 1, 2010 7:48:41 PM)
i default to i'll have my lawyer husband call you!

anna (Jul 1, 2010 7:48:48 PM)
wanted to do unneccessary work, but hubby put him straight

twinglema (Jul 1, 2010 7:48:59 PM)
men are good for something ;)

anna (Jul 1, 2010 7:49:06 PM)
better for you than my wc repair hubby!

twinglema (Jul 1, 2010 7:49:15 PM)
yeah, lol

twinglema (Jul 1, 2010 7:49:34 PM)
Well H is extremely lucky as she fell 5 feet onto concrete

anna (Jul 1, 2010 7:49:39 PM)
and they say I need new brakes again--I must be very hard on brakes

twinglema (Jul 1, 2010 7:49:45 PM)
i am too

anna (Jul 1, 2010 7:49:54 PM)
oh boy--lucky no concussion

twinglema (Jul 1, 2010 7:49:54 PM)
have them put ceramic ones on

twinglema (Jul 1, 2010 7:50:07 PM)
yeah and she still has youth camp and dance camp

anna (Jul 1, 2010 7:50:23 PM)
will she feel up to them oncrutches?

twinglema (Jul 1, 2010 7:50:40 PM)
welll the doc thinks they are fare nough out that she will be ok

twinglema (Jul 1, 2010 7:50:56 PM)
she will be all better about the time i have surgery

anna (Jul 1, 2010 7:51:02 PM)
good thing

twinglema (Jul 1, 2010 7:51:22 PM)
although saturday she is going to a concert and i may send her in lukes wc

anna (Jul 1, 2010 7:51:36 PM)
and my friend thinks she has to go bankrupt to save her house

twinglema (Jul 1, 2010 7:51:38 PM)
so i am walking all over taking car of her!

twinglema (Jul 1, 2010 7:51:44 PM)
oh no

twinglema (Jul 1, 2010 7:51:54 PM)
but she'll get to stay in it

twinglema (Jul 1, 2010 7:51:55 PM)
?

anna (Jul 1, 2010 7:51:59 PM)
if she fits the wc that is an option to help her recover quicker

twinglema (Jul 1, 2010 7:52:15 PM)
and i am afraid with crowds she may get bumped

anna (Jul 1, 2010 7:52:34 PM)
it is her last resort--she was a credit manager, and hates the idea

anna (Jul 1, 2010 7:52:48 PM)
yes, people usually stay away from a wc

twinglema (Jul 1, 2010 7:52:48 PM)
she is not a credit manager any more?

twinglema (Jul 1, 2010 7:52:52 PM)
obciously

twinglema (Jul 1, 2010 7:53:04 PM)
*obviously

anna (Jul 1, 2010 7:53:14 PM)
no--company went belly up and she is disabled due to on oxygen and in wc

anna (Jul 1, 2010 7:53:36 PM)
worked for 40 years tho

anna (Jul 1, 2010 7:54:18 PM)
their home is too expensive--and too full of junk---but maybe I can help her sell stuff

twinglema (Jul 1, 2010 7:54:58 PM)
good idea

anna (Jul 1, 2010 7:55:06 PM)
they cannot afford to live there and re-fi was denied due to their low income

anna (Jul 1, 2010 7:55:25 PM)
she really needs assisted living

twinglema (Jul 1, 2010 7:55:44 PM)
can she get it?

anna (Jul 1, 2010 7:55:55 PM)
she doesn't want it

twinglema (Jul 1, 2010 7:56:19 PM)
cant really blame her

anna (Jul 1, 2010 7:57:00 PM)
but, so hard to see her unable to clean house or bathe herself---so0me people are not as well off as even poor ol me

anna (Jul 1, 2010 7:57:12 PM)
but, I have more than I need

anna (Jul 1, 2010 7:57:35 PM)
so cannot complain--although I am!

twinglema (Jul 1, 2010 7:57:56 PM)
there were 2 gals at my knee replacement who wanted to go to skilled care

anna (Jul 1, 2010 7:58:10 PM)
could they?

twinglema (Jul 1, 2010 7:58:15 PM)
i am the same way

twinglema (Jul 1, 2010 7:58:21 PM)
i guess they can

anna (Jul 1, 2010 7:58:31 PM)
usually there is a few days there is all

twinglema (Jul 1, 2010 7:58:35 PM)
i worked in one for years-no thank you

twinglema (Jul 1, 2010 7:58:46 PM)
yeah

twinglema (Jul 1, 2010 7:58:50 PM)
but still

anna (Jul 1, 2010 7:59:00 PM)
oh my friends was very nice and didn't smell and had cats

twinglema (Jul 1, 2010 7:59:05 PM)
so aside from car and friend was week ok?

anna (Jul 1, 2010 7:59:27 PM)
hubby's birthday last night so we went out

twinglema (Jul 1, 2010 7:59:39 PM)
oh tell him happy birthday

anna (Jul 1, 2010 7:59:42 PM)
for his present I did something unusual

twinglema (Jul 1, 2010 7:59:56 PM)
hmmmm?

anna (Jul 1, 2010 7:59:58 PM)
I threw out all his old underwear and got him all new

twinglema (Jul 1, 2010 8:00:05 PM)
LOL

twinglema (Jul 1, 2010 8:00:10 PM)
cuz they never do!

anna (Jul 1, 2010 8:00:15 PM)
exactly

anna (Jul 1, 2010 8:00:36 PM)
they feel underwear has to be going on 20 years old I guess

twinglema (Jul 1, 2010 8:00:46 PM)
how true

paper (Jul 1, 2010 8:01:08 PM)
(This user has entered DMD Parent Chat)

anna (Jul 1, 2010 8:01:11 PM)
then I lost my keys

paper (Jul 1, 2010 8:01:13 PM)
hi

twinglema (Jul 1, 2010 8:01:15 PM)
oh no!

anna (Jul 1, 2010 8:01:18 PM)
but car didn't work anyways

twinglema (Jul 1, 2010 8:01:19 PM)
hi paper

anna (Jul 1, 2010 8:01:23 PM)
Hi L

twinglema (Jul 1, 2010 8:01:28 PM)
i will be right back-got to get hannah into wc

anna (Jul 1, 2010 8:02:03 PM)
Paper, your cats eyes looked radio-active--spooky

paper (Jul 1, 2010 8:02:09 PM)
lol

anna (Jul 1, 2010 8:02:26 PM)
R said he had a photo to send you--hope he does

paper (Jul 1, 2010 8:02:37 PM)
her eyes glow everytime when u take her pic

paper (Jul 1, 2010 8:02:41 PM)
oh ok great

anna (Jul 1, 2010 8:02:56 PM)
feeling better now?

matt-p (Jul 1, 2010 8:03:00 PM)
(This user has entered DMD Parent Chat)

paper (Jul 1, 2010 8:03:01 PM)
ya

paper (Jul 1, 2010 8:03:03 PM)
hi matt

anna (Jul 1, 2010 8:03:08 PM)
Hi Matt

matt-p (Jul 1, 2010 8:03:11 PM)
hey all

anna (Jul 1, 2010 8:03:19 PM)
R said he just sent it Paper

anna (Jul 1, 2010 8:03:35 PM)
on your fb page

anna (Jul 1, 2010 8:03:40 PM)
Hi Matt

paper (Jul 1, 2010 8:03:42 PM)
yep just got the thing for it

paper (Jul 1, 2010 8:03:48 PM)
brb ill go look at it

anna (Jul 1, 2010 8:04:00 PM)
How does your garden grow Matt?

matt-p (Jul 1, 2010 8:04:18 PM)
anna twig you all shoulds watch discovery health there is a toddler on there he is the strongest toddler

anna (Jul 1, 2010 8:04:31 PM)
my friend watered her tomato I gave her to death

matt-p (Jul 1, 2010 8:04:36 PM)
its ok need some rain

anna (Jul 1, 2010 8:04:43 PM)
yes, poor guy.

paper (Jul 1, 2010 8:05:09 PM)
lol that it is funny

paper (Jul 1, 2010 8:05:24 PM)
it is so fuzzy he has a glow

anna (Jul 1, 2010 8:05:33 PM)
zombie cats

paper (Jul 1, 2010 8:05:37 PM)
lol

matt-p (Jul 1, 2010 8:06:59 PM)
anna how have you been

anna (Jul 1, 2010 8:07:08 PM)
gotta feed everyone and go to store--hubby volunteered me to fix fruit plate for his work and all I have is raisins

paper (Jul 1, 2010 8:07:27 PM)
lol safe trip anna

anna (Jul 1, 2010 8:07:28 PM)
my car is in shop--won't start without jump--battery being drained

matt-p (Jul 1, 2010 8:07:51 PM)
ops

matt-p (Jul 1, 2010 8:08:01 PM)
the altenator has died

anna (Jul 1, 2010 8:08:11 PM)
weather not so great here either--everyone is getting depressed it seeems

anna (Jul 1, 2010 8:08:19 PM)
no, alternator is fine

matt-p (Jul 1, 2010 8:08:50 PM)
that or the starter is weak

anna (Jul 1, 2010 8:08:52 PM)
shop tried to take advantage of me as a woman so had to get hubby

matt-p (Jul 1, 2010 8:09:38 PM)
no need to get hubby just take it elseware

anna (Jul 1, 2010 8:10:06 PM)
hubby was given name of shop as being honest shop

anna (Jul 1, 2010 8:10:20 PM)
you mean tow it elsewhere lol

matt-p (Jul 1, 2010 8:10:21 PM)
wow

anna (Jul 1, 2010 8:10:51 PM)
anyway, sorry gotta go for now--hope to bbl but no guarantees. have a nice chat.

matt-p (Jul 1, 2010 8:10:51 PM)
well what ever it takes i have no use for a cheat shop

matt-p (Jul 1, 2010 8:11:06 PM)
you be safe anna

anna (Jul 1, 2010 8:11:31 PM)
ty--U2 y'all. will stay in until it kicks me out if not back soon

matt-p (Jul 1, 2010 8:11:44 PM)
ok

paper (Jul 1, 2010 8:11:46 PM)
k

matt-p (Jul 1, 2010 8:12:08 PM)
is twig here

paper (Jul 1, 2010 8:12:20 PM)
think so

paper (Jul 1, 2010 8:12:58 PM)
hey t

matt-p (Jul 1, 2010 8:13:15 PM)
hey twig how you all been

twinglema (Jul 1, 2010 8:13:43 PM)
back

twinglema (Jul 1, 2010 8:13:49 PM)
boy that was fun anna

twinglema (Jul 1, 2010 8:14:57 PM)
oops shes gone

paper (Jul 1, 2010 8:15:01 PM)
what u been up to t

twinglema (Jul 1, 2010 8:15:01 PM)
how are you 2?

paper (Jul 1, 2010 8:15:04 PM)
i am ok

matt-p (Jul 1, 2010 8:15:12 PM)
doing ok here

twinglema (Jul 1, 2010 8:15:26 PM)
my daughter fell off a broken slide ladder and sprained her ankle

paper (Jul 1, 2010 8:15:34 PM)
ouch

matt-p (Jul 1, 2010 8:15:38 PM)
oh no

paper (Jul 1, 2010 8:15:46 PM)
i tell u if it isnt one thing it is another

twinglema (Jul 1, 2010 8:15:49 PM)
and she is very frustrated and crying cuz she wants to walk on it

matt-p (Jul 1, 2010 8:16:00 PM)
will she be ok

twinglema (Jul 1, 2010 8:16:03 PM)
yes

twinglema (Jul 1, 2010 8:16:21 PM)
she had palnned on having friends over and think that makes her feel worse instead of better

matt-p (Jul 1, 2010 8:16:30 PM)
how old is she

twinglema (Jul 1, 2010 8:16:32 PM)
14

twinglema (Jul 1, 2010 8:16:43 PM)
so all is drama!

paper (Jul 1, 2010 8:16:55 PM)
lol

twinglema (Jul 1, 2010 8:17:08 PM)
her friends took her up to park in a wheelchair

paper (Jul 1, 2010 8:17:16 PM)
lol

matt-p (Jul 1, 2010 8:17:38 PM)
we just got back from boat race

twinglema (Jul 1, 2010 8:17:42 PM)
fun

matt-p (Jul 1, 2010 8:18:03 PM)
getting things set upp for me to go

twinglema (Jul 1, 2010 8:18:04 PM)
hey matt i'm gonna get 4 tomatoes out of my patio garden tomorrow

paper (Jul 1, 2010 8:18:08 PM)
well guys i need to get so have a good weekend

twinglema (Jul 1, 2010 8:18:12 PM)
ok paper

matt-p (Jul 1, 2010 8:18:13 PM)
great

twinglema (Jul 1, 2010 8:18:16 PM)
happy fourth

paper (Jul 1, 2010 8:18:28 PM)
to u too

matt-p (Jul 1, 2010 8:18:31 PM)
happy fourth

paper (Jul 1, 2010 8:18:32 PM)
night

paper (Jul 1, 2010 8:18:35 PM)
(This user has left DigiChat)

twinglema (Jul 1, 2010 8:18:35 PM)
nite

twinglema (Jul 1, 2010 8:18:52 PM)
cant believe tomorrow is jusly

twinglema (Jul 1, 2010 8:18:55 PM)
july

matt-p (Jul 1, 2010 8:19:10 PM)
we have got two qt of cherry maters andabout 12 big one

matt-p (Jul 1, 2010 8:19:34 PM)
oh and did i tell you about the zucinie

twinglema (Jul 1, 2010 8:19:35 PM)
well i only have 2 plants

twinglema (Jul 1, 2010 8:19:43 PM)
ack zucchini

matt-p (Jul 1, 2010 8:19:52 PM)
thats good for 2 plants

matt-p (Jul 1, 2010 8:20:12 PM)
we have pulled about 40 them buggers

matt-p (Jul 1, 2010 8:20:38 PM)
and 30 or so the yellow summer squash

matt-p (Jul 1, 2010 8:21:05 PM)
when are you getting your knee fixed

twinglema (Jul 1, 2010 8:21:13 PM)
do you selll them at a farmers market?

matt-p (Jul 1, 2010 8:21:37 PM)
not had to so far

matt-p (Jul 1, 2010 8:21:59 PM)
everything has been spokein for with the stores

matt-p (Jul 1, 2010 8:22:55 PM)
have 4 stores here that have been buying everything

matt-p (Jul 1, 2010 8:23:12 PM)
and they have been comeing to pick it up too

twinglema (Jul 1, 2010 8:24:25 PM)
awesome

matt-p (Jul 1, 2010 8:24:34 PM)
i know

matt-p (Jul 1, 2010 8:24:45 PM)
its been to good to be true

twinglema (Jul 1, 2010 8:25:17 PM)
God is good

matt-p (Jul 1, 2010 8:26:35 PM)
i did have a church need some stuff for a family and gave them some summer squash and zucinie

twinglema (Jul 1, 2010 8:27:29 PM)
that is good of you

matt-p (Jul 1, 2010 8:27:39 PM)
not bragging but all the stores had what they wanted and did not want it to waste

twinglema (Jul 1, 2010 8:27:40 PM)
its hard for poor people to get fresh stuff

rayla (Jul 1, 2010 8:27:47 PM)
(This user has entered DMD Parent Chat)

twinglema (Jul 1, 2010 8:27:52 PM)
hi rayla

twinglema (Jul 1, 2010 8:27:58 PM)
how are you?

matt-p (Jul 1, 2010 8:28:03 PM)
hey rayla

rayla (Jul 1, 2010 8:28:08 PM)
Hello

rayla (Jul 1, 2010 8:28:33 PM)
Doing okay

twinglema (Jul 1, 2010 8:28:33 PM)
in case your memory is as bad as min, i have a 13 year old dmder

matt-p (Jul 1, 2010 8:28:39 PM)
twing its not hard now i will give to them when i can

twinglema (Jul 1, 2010 8:28:41 PM)
*mine

twinglema (Jul 1, 2010 8:28:50 PM)
good matt

matt-p (Jul 1, 2010 8:29:10 PM)
rayla are you new

rayla (Jul 1, 2010 8:29:21 PM)
I have 13 year old, too.

twinglema (Jul 1, 2010 8:29:42 PM)
he doing ok this week?

twinglema (Jul 1, 2010 8:29:48 PM)
and you of course

rayla (Jul 1, 2010 8:30:00 PM)
No, just haven't been here for awhile.

matt-p (Jul 1, 2010 8:30:26 PM)
great

matt-p (Jul 1, 2010 8:30:32 PM)
nice to meet you

rayla (Jul 1, 2010 8:30:52 PM)
Same here, Matt

rayla (Jul 1, 2010 8:31:32 PM)
What is your story?

matt-p (Jul 1, 2010 8:31:33 PM)
rayla i have sci and early onset parkinsons

twinglema (Jul 1, 2010 8:31:43 PM)
how is he doing rayla?

rayla (Jul 1, 2010 8:32:15 PM)
Getting very weak.

matt-p (Jul 1, 2010 8:32:16 PM)
i am in w/c

twinglema (Jul 1, 2010 8:32:25 PM)
so sorry

twinglema (Jul 1, 2010 8:32:31 PM)
this is such a hard time

twinglema (Jul 1, 2010 8:32:46 PM)
does he get around in a wc

twinglema (Jul 1, 2010 8:32:56 PM)
i do remeber you from chat a while back

rayla (Jul 1, 2010 8:33:05 PM)
Yes it is! Yes.

twinglema (Jul 1, 2010 8:33:10 PM)
anna was here but is feeding family

twinglema (Jul 1, 2010 8:33:33 PM)
my sons are at camp so i am having a break

rayla (Jul 1, 2010 8:33:35 PM)
Sorry I missed her.

twinglema (Jul 1, 2010 8:33:42 PM)
she ususally comes back

rayla (Jul 1, 2010 8:33:57 PM)
How are they doing?

twinglema (Jul 1, 2010 8:34:23 PM)
R is not working right now but prob will before long. she is good but her car keeps dying

matt-p (Jul 1, 2010 8:34:37 PM)
rayla if you are on facebook and want to put a face to the name you can see me there in my w/c

twinglema (Jul 1, 2010 8:34:47 PM)
you can always read transcripts to catch up

rayla (Jul 1, 2010 8:35:06 PM)
I am on facebook

matt-p (Jul 1, 2010 8:35:07 PM)
i am very lucky i have a fancy w/c

twinglema (Jul 1, 2010 8:35:36 PM)
i think everyone is on facebookl

anna (Jul 1, 2010 8:35:42 PM)
Saw Rayla here and had to come in before I go to store

matt-p (Jul 1, 2010 8:35:52 PM)
i will pm you my facebook name

rayla (Jul 1, 2010 8:36:07 PM)
How old are you matt? My son is Matt, too.

twinglema (Jul 1, 2010 8:36:13 PM)
ty anna

matt-p (Jul 1, 2010 8:36:18 PM)
matt phillips hanover indiana

twinglema (Jul 1, 2010 8:36:29 PM)
send hubby to store, hes the one who volunteerd

rayla (Jul 1, 2010 8:36:29 PM)
Hi, Anna.

anna (Jul 1, 2010 8:36:39 PM)
Rayla, it has been awhile! What is your son doing in terms of changes?

anna (Jul 1, 2010 8:37:33 PM)
I have to drive little sports car to grocery and cram 10 bags(reusable of course) in

rayla (Jul 1, 2010 8:37:33 PM)
Getting very weak and has developed a heart murmer

twinglema (Jul 1, 2010 8:37:45 PM)
is he taking anything for his heart?

matt-p (Jul 1, 2010 8:37:53 PM)
that strongest toddler thing on discovery health is talking about what this kid has to offer to the dmd

anna (Jul 1, 2010 8:37:54 PM)
heart murmurs are very common--in fact I have one

twinglema (Jul 1, 2010 8:37:58 PM)
i do too

rayla (Jul 1, 2010 8:37:59 PM)
not yet

matt-p (Jul 1, 2010 8:38:13 PM)
i have one too

twinglema (Jul 1, 2010 8:38:17 PM)
we have had luke on enalapril for awhile

rayla (Jul 1, 2010 8:38:42 PM)
I have heart problems myself

anna (Jul 1, 2010 8:38:42 PM)
my son is 29 now and also takes Digoxin and Coreg

anna (Jul 1, 2010 8:39:50 PM)
what the kid has to offer to the MDA? or in terms of building muscles within dmd?

matt-p (Jul 1, 2010 8:40:35 PM)
they are hopeing that his disorder helps find someway to help dmd

anna (Jul 1, 2010 8:40:39 PM)
BIG controversy going on in DMD community----look for the group on fb called STS Treatment and watch fur fly

twinglema (Jul 1, 2010 8:40:47 PM)
yep

twinglema (Jul 1, 2010 8:41:12 PM)
explain it in englesh anna

matt-p (Jul 1, 2010 8:41:19 PM)
the kid is only three but he is mussle bound to the hilt

anna (Jul 1, 2010 8:41:19 PM)
well, hope they check his dystrophin levels

anna (Jul 1, 2010 8:41:32 PM)
to compare

twinglema (Jul 1, 2010 8:41:41 PM)
he is facing serious issues as he ages

twinglema (Jul 1, 2010 8:42:10 PM)
what exactly is STS?

anna (Jul 1, 2010 8:42:19 PM)
yes, wonder how his heart is since that is a muscle

twinglema (Jul 1, 2010 8:42:30 PM)
thats what the docs were worried about

anna (Jul 1, 2010 8:42:51 PM)
why are you asking me Twingle? not the scientific sort--just interested in reading all the info

twinglema (Jul 1, 2010 8:42:52 PM)
i saw it along time ago and he has some thing way to high dont rememebr what

anna (Jul 1, 2010 8:43:10 PM)
still here Rayla?

twinglema (Jul 1, 2010 8:43:17 PM)
cuz i figured you had read it and i havent!

rayla (Jul 1, 2010 8:43:21 PM)
yes

anna (Jul 1, 2010 8:44:02 PM)
it is interesting reading about dmd Mom who took son to Texas for some sort of electrical stimulation therapy and says his dmd is improved

anna (Jul 1, 2010 8:44:13 PM)
time will tell--wish it was that easy

twinglema (Jul 1, 2010 8:44:24 PM)
wish i could wave a magic wand

rayla (Jul 1, 2010 8:44:34 PM)
amen

anna (Jul 1, 2010 8:44:40 PM)
all us moms do

twinglema (Jul 1, 2010 8:44:42 PM)
some moms on the fb dmd thing have there kids on every supplement ever mentioned

twinglema (Jul 1, 2010 8:45:06 PM)
i was always afraid cuz they are not regulated

anna (Jul 1, 2010 8:45:09 PM)
yes---and take their kids to CInncinnati

twinglema (Jul 1, 2010 8:45:22 PM)
what is in cinncinnati?

twinglema (Jul 1, 2010 8:45:40 PM)
is sts the stimulatuion thing?

anna (Jul 1, 2010 8:46:04 PM)
a Dr Wong--their are groups on the PPMD discussion site all about it, as well as STS treatment too

twinglema (Jul 1, 2010 8:46:19 PM)
i'll have to read up i guess

anna (Jul 1, 2010 8:46:33 PM)
but, we are doing okay I think as we are doing since son is 29 and able to work

twinglema (Jul 1, 2010 8:46:39 PM)
amen

rayla (Jul 1, 2010 8:46:52 PM)
ditto

anna (Jul 1, 2010 8:47:06 PM)
the STS doc is in Texas

twinglema (Jul 1, 2010 8:47:11 PM)
as far as i know not even dr wong can stop dmd

anna (Jul 1, 2010 8:47:19 PM)
exactly

matt-p (Jul 1, 2010 8:47:24 PM)
rayla where are you from

rayla (Jul 1, 2010 8:47:32 PM)
WV

matt-p (Jul 1, 2010 8:47:40 PM)
neat

rayla (Jul 1, 2010 8:47:48 PM)
You?

twinglema (Jul 1, 2010 8:47:51 PM)
ok this is random but i heard today we had 14 rainy days in june

matt-p (Jul 1, 2010 8:47:55 PM)
that state is so pretty with the mts and all

twinglema (Jul 1, 2010 8:47:59 PM)
nebraska here

anna (Jul 1, 2010 8:48:12 PM)
our weather is awful so far in Seattle area

twinglema (Jul 1, 2010 8:48:17 PM)
may as well move to where anna is

anna (Jul 1, 2010 8:48:28 PM)
yes!

twinglema (Jul 1, 2010 8:48:44 PM)
hope H is staying off her foot at park

twinglema (Jul 1, 2010 8:48:50 PM)
she is very teary

matt-p (Jul 1, 2010 8:48:57 PM)
i would move there in a new york second

anna (Jul 1, 2010 8:49:00 PM)
haha--isn't she a girl teen??

twinglema (Jul 1, 2010 8:49:03 PM)
yes

twinglema (Jul 1, 2010 8:49:09 PM)
and a frustrated one at that!

twinglema (Jul 1, 2010 8:49:27 PM)
and her sprain WILL heal

anna (Jul 1, 2010 8:49:42 PM)
drama is wherever a teen girl is--my daughter broke a window and kacked a hole in her wall about that age

matt-p (Jul 1, 2010 8:50:17 PM)
dang this kid just did 17 situps in one min

twinglema (Jul 1, 2010 8:50:21 PM)
at least her friends like me lol

anna (Jul 1, 2010 8:50:25 PM)
and she turned out well and is now an RN and a mom

twinglema (Jul 1, 2010 8:50:34 PM)
there is hope ;)

anna (Jul 1, 2010 8:50:39 PM)
yes there is

anna (Jul 1, 2010 8:51:09 PM)
I refuse to pay $3.99 per pound of cherries!!

twinglema (Jul 1, 2010 8:51:12 PM)
anything we can do rayla?

twinglema (Jul 1, 2010 8:51:22 PM)
are you at the store?!

rayla (Jul 1, 2010 8:51:26 PM)
pray

matt-p (Jul 1, 2010 8:51:32 PM)
they just said he is 3 but has the core stringth of a 6 year old

twinglema (Jul 1, 2010 8:51:33 PM)
you got it

anna (Jul 1, 2010 8:51:44 PM)
no--just checking ads to decide which of 2 close stores to go to

rayla (Jul 1, 2010 8:51:48 PM)
thanks

twinglema (Jul 1, 2010 8:51:56 PM)
that is why i am here!

anna (Jul 1, 2010 8:51:58 PM)
closer the better

twinglema (Jul 1, 2010 8:52:06 PM)
send hubby!

rayla (Jul 1, 2010 8:52:46 PM)
It helps so much to talk to you guys

anna (Jul 1, 2010 8:52:50 PM)
I need too many other things and he is the worst at a store--when R and I were away from him he bought the very same things each time and never looked at the sales

twinglema (Jul 1, 2010 8:52:57 PM)
glad to hear rayla

twinglema (Jul 1, 2010 8:53:10 PM)
did your son do camp this year?

anna (Jul 1, 2010 8:53:17 PM)
my son has a new thingy to hold his hand on the control now on his wc

rayla (Jul 1, 2010 8:53:23 PM)
no

twinglema (Jul 1, 2010 8:53:25 PM)
hubby make it?

anna (Jul 1, 2010 8:53:34 PM)
it used to fall off the armrest a loot

twinglema (Jul 1, 2010 8:53:43 PM)
a lot too i bet

twinglema (Jul 1, 2010 8:53:58 PM)
he ever go to camp?

anna (Jul 1, 2010 8:54:04 PM)
hubby made it out of parts at work--one advantage to having wc repairman in the house

twinglema (Jul 1, 2010 8:54:13 PM)
absolutely

anna (Jul 1, 2010 8:54:20 PM)
suddenly I am aboot Canadian?

twinglema (Jul 1, 2010 8:54:35 PM)
i guess!

rayla (Jul 1, 2010 8:54:40 PM)
No, he has a lot of health issues.

matt-p (Jul 1, 2010 8:54:55 PM)
think that would be neat to do a camp if they had one for peeps my age

twinglema (Jul 1, 2010 8:54:59 PM)
they can usually handle about anythin at camp

anna (Jul 1, 2010 8:55:03 PM)
does he have the Cough Assist Rayla?

twinglema (Jul 1, 2010 8:55:32 PM)
one family forgot formula for their son-a four hour trip back home and lucked out cuz walmart had it!

anna (Jul 1, 2010 8:56:06 PM)
we are holding off the tube feeding this week cause R's tube site is not looking good again

anna (Jul 1, 2010 8:56:46 PM)
I am still venting air out of his tummy twice a day and giving him Miralax into it

rayla (Jul 1, 2010 8:56:53 PM)
I have been trying to get a cough assist device. How can I obtain one? Believe it or not nobody in this area carries one.

rayla (Jul 1, 2010 8:57:28 PM)
It's unreal

anna (Jul 1, 2010 8:57:29 PM)
well, you need one! doctor can write script and you can call company to find out where to get one

matt-p (Jul 1, 2010 8:57:30 PM)
wow

anna (Jul 1, 2010 8:57:51 PM)
maybe MDA loan closet has one extra?

rayla (Jul 1, 2010 8:58:10 PM)
I have script,

rayla (Jul 1, 2010 8:58:33 PM)
none at MDA loan closet

anna (Jul 1, 2010 8:58:36 PM)
I called the President of one company once when I wanted his product--and he found where I could get it

matt-p (Jul 1, 2010 8:59:01 PM)
anna what brand is R's

anna (Jul 1, 2010 8:59:04 PM)
your RT might know what to do to get one?

anna (Jul 1, 2010 8:59:10 PM)
Emerson

rayla (Jul 1, 2010 8:59:44 PM)
This issue is making me quite angry

matt-p (Jul 1, 2010 8:59:55 PM)
rayla google emerson and get with company rep and rep will find dealer in your area

anna (Jul 1, 2010 9:00:03 PM)
or your MDA clinic? yes, he needs one for any cold/choking incidents

rayla (Jul 1, 2010 9:00:17 PM)
Thank you, I will.

anna (Jul 1, 2010 9:00:32 PM)
it has saved my son from aspiration pneumonia more than once

twinglema (Jul 1, 2010 9:00:41 PM)
your mda clinic should know how to get one

rayla (Jul 1, 2010 9:01:06 PM)
My son has had peumonia twice

anna (Jul 1, 2010 9:01:19 PM)
mine never has PTL

rayla (Jul 1, 2010 9:01:32 PM)
amen

twinglema (Jul 1, 2010 9:01:45 PM)
who wrote the script? they shoudl know where to get it

anna (Jul 1, 2010 9:01:46 PM)
I am scared of any cold as it can develope into pneumonia so fast in out guys

anna (Jul 1, 2010 9:01:56 PM)
our

rayla (Jul 1, 2010 9:01:59 PM)
YES!

anna (Jul 1, 2010 9:02:08 PM)
so, I cannot type OR spell tonight

twinglema (Jul 1, 2010 9:02:25 PM)
cuz you have fruit on your mind anna

anna (Jul 1, 2010 9:03:02 PM)
but sorry, must go to store---now that sounds bad. I will make hubby cut it up and arrange artistically tho

twinglema (Jul 1, 2010 9:03:11 PM)
good for you'

twinglema (Jul 1, 2010 9:03:28 PM)
have a great fourth of july!

anna (Jul 1, 2010 9:03:58 PM)
ty--you all too. Rayla, I will pm you my e-addy before I leave

rayla (Jul 1, 2010 9:04:14 PM)
ok

twinglema (Jul 1, 2010 9:05:03 PM)
brb

anna (Jul 1, 2010 9:05:39 PM)
Goodnight all. Happy Fourth to all.

anna (Jul 1, 2010 9:05:59 PM)
did you get it Rayla?

twinglema (Jul 1, 2010 9:06:06 PM)
back

twinglema (Jul 1, 2010 9:06:07 PM)
night

twinglema (Jul 1, 2010 9:06:19 PM)
any palns anna?

twinglema (Jul 1, 2010 9:06:23 PM)
plans

rayla (Jul 1, 2010 9:06:27 PM)
yes

anna (Jul 1, 2010 9:06:45 PM)
depends on weather-----as usual

anna (Jul 1, 2010 9:06:47 PM)
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rayla (Jul 1, 2010 9:08:10 PM)
twingle, you on facebook?

twinglema (Jul 1, 2010 9:08:13 PM)
yes

twinglema (Jul 1, 2010 9:08:18 PM)
kelly wilson omaha ne

rayla (Jul 1, 2010 9:08:32 PM)
Can I look you up?

twinglema (Jul 1, 2010 9:08:40 PM)
of course!

rayla (Jul 1, 2010 9:08:49 PM)
Great!

twinglema (Jul 1, 2010 9:08:51 PM)
i am on WAY to much

twinglema (Jul 1, 2010 9:09:16 PM)
man teenage girls are giggly

rayla (Jul 1, 2010 9:09:19 PM)
I wish I had more time to devote

twinglema (Jul 1, 2010 9:09:34 PM)
do you have other kids rayla?

rayla (Jul 1, 2010 9:09:55 PM)
Daughter who is 11.

twinglema (Jul 1, 2010 9:10:11 PM)
well you have this to look forward too ;)

matt-p (Jul 1, 2010 9:10:25 PM)
rayla dont run off i have just about got some info for you

rayla (Jul 1, 2010 9:10:41 PM)
okay, matt

twinglema (Jul 1, 2010 9:11:11 PM)
my daughter fell off a slide ladder and sprained her ankle

rayla (Jul 1, 2010 9:11:47 PM)
Oh, sorry to hear that!

twinglema (Jul 1, 2010 9:11:53 PM)
me too!

twinglema (Jul 1, 2010 9:12:04 PM)
she is not most cooperative patient

rayla (Jul 1, 2010 9:12:17 PM)
How old is she?

twinglema (Jul 1, 2010 9:12:33 PM)
if i catch her walking on it one more time i am gonna smack her with her crutches!

twinglema (Jul 1, 2010 9:12:36 PM)
14

twinglema (Jul 1, 2010 9:12:51 PM)
and she has 3 friends over

rayla (Jul 1, 2010 9:13:15 PM)
At 14 she might smack you back. lol

twinglema (Jul 1, 2010 9:13:28 PM)
she cant move fast enough to get me now!

rayla (Jul 1, 2010 9:14:01 PM)
Bless her heart!

twinglema (Jul 1, 2010 9:16:13 PM)
she is drama queen any way

twinglema (Jul 1, 2010 9:16:24 PM)
she fell onto cement so she is very lucky

rayla (Jul 1, 2010 9:16:56 PM)
very much so

rayla (Jul 1, 2010 9:17:32 PM)
At 14 they are all drama queens

twinglema (Jul 1, 2010 9:17:42 PM)
we have no leg luck here- i am having knee relacement july 23

twinglema (Jul 1, 2010 9:17:48 PM)
yes they are

rayla (Jul 1, 2010 9:19:01 PM)
I need one but I keep putting it off. I guess when I can't walk anymore I will have it done.

twinglema (Jul 1, 2010 9:19:46 PM)
i decided better to have bad pain for little while than medium pain all the time

rayla (Jul 1, 2010 9:20:40 PM)
I don't know what is worse.

twinglema (Jul 1, 2010 9:21:23 PM)
all the time pain i think

twinglema (Jul 1, 2010 9:21:45 PM)
you are younger than me i think sorry you have bad knee too

twinglema (Jul 1, 2010 9:22:00 PM)
my son is still doing amazingly well

twinglema (Jul 1, 2010 9:22:04 PM)
he is in co now

matt-p (Jul 1, 2010 9:22:21 PM)
rayla

rayla (Jul 1, 2010 9:22:27 PM)
I bet I'm older than you.

twinglema (Jul 1, 2010 9:22:32 PM)
im 48

rayla (Jul 1, 2010 9:22:37 PM)
Matt?

matt-p (Jul 1, 2010 9:22:38 PM)
you got paper pen ready

twinglema (Jul 1, 2010 9:22:41 PM)
just turned

rayla (Jul 1, 2010 9:24:19 PM)
yes,Matt

matt-p (Jul 1, 2010 9:24:23 PM)
1-800-453-6860

rayla (Jul 1, 2010 9:25:18 PM)
Got it, Matt

matt-p (Jul 1, 2010 9:25:21 PM)
that should be the compant that made R's cough machine

rayla (Jul 1, 2010 9:25:34 PM)
Thank You!

twinglema (Jul 1, 2010 9:25:37 PM)
nice job matt

matt-p (Jul 1, 2010 9:26:16 PM)
its not a nice job yet i am not sure that is right but i did try

rayla (Jul 1, 2010 9:26:41 PM)
Half dead, Twingle 55 in 2 weeks.

twinglema (Jul 1, 2010 9:26:51 PM)
You are not LOL

rayla (Jul 1, 2010 9:27:02 PM)
Lord help me!

twinglema (Jul 1, 2010 9:27:10 PM)
Lord help us all

rayla (Jul 1, 2010 9:27:28 PM)
REALLY!

matt-p (Jul 1, 2010 9:27:30 PM)
when rayla comes back in chat and says that worked and i have one found then i will be happy

rayla (Jul 1, 2010 9:27:55 PM)
Bless you, Matt!

matt-p (Jul 1, 2010 9:28:41 PM)
rayla please add me to facebook and when you have called them and they have got you headed in the right direction let me know

rayla (Jul 1, 2010 9:29:11 PM)
I definitely will!

twinglema (Jul 1, 2010 9:29:50 PM)
you are very sweet matt

matt-p (Jul 1, 2010 9:30:08 PM)
i just hope that numbr dont send you on a monkey chase

rayla (Jul 1, 2010 9:30:16 PM)
Ditto

matt-p (Jul 1, 2010 9:30:48 PM)
twing i try to help when i can

rayla (Jul 1, 2010 9:30:50 PM)
I mean sweet

matt-p (Jul 1, 2010 9:31:28 PM)
it really helps to come in here and chat when i can turn the table and help back i want the chance

matt-p (Jul 1, 2010 9:32:13 PM)
its so nice to have a chat to come to that there is no fighting

twinglema (Jul 1, 2010 9:32:22 PM)
fighting?

rayla (Jul 1, 2010 9:32:41 PM)
It's wonderful that these chats are available.

matt-p (Jul 1, 2010 9:32:49 PM)
i have been to many chats that was running over with drama

twinglema (Jul 1, 2010 9:34:05 PM)
too bad more people do not take advantage of them

rayla (Jul 1, 2010 9:34:05 PM)
Sorry, I have to run. God bless you both. I hope to talk to you soon!

matt-p (Jul 1, 2010 9:34:09 PM)
rayla what kind of chair dose your son have

twinglema (Jul 1, 2010 9:34:13 PM)
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twinglema (Jul 1, 2010 9:34:19 PM)
(This user has entered DMD Parent Chat)

twinglema (Jul 1, 2010 9:34:28 PM)
nite, come back soon

rayla (Jul 1, 2010 9:34:34 PM)
manual

rayla (Jul 1, 2010 9:34:40 PM)
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matt-p (Jul 1, 2010 9:34:44 PM)
twing you need the duct tape

twinglema (Jul 1, 2010 9:34:53 PM)
why?

matt-p (Jul 1, 2010 9:35:04 PM)
you bounceing in and out

twinglema (Jul 1, 2010 9:35:07 PM)
i gotta go clean up after the girls

twinglema (Jul 1, 2010 9:35:08 PM)
yep

matt-p (Jul 1, 2010 9:35:18 PM)
ok you all be safe

matt-p (Jul 1, 2010 9:35:28 PM)
and have a good 4th

twinglema (Jul 1, 2010 9:36:12 PM)
u 2

twinglema (Jul 1, 2010 9:36:22 PM)
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matt-p (Jul 1, 2010 9:36:23 PM)
(This user has left DigiChat)