DMD Parent Chat
anna (Jul 1, 2010 7:45:28 PM)
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twinglema (Jul 1, 2010 7:45:47 PM)
(This user has entered DMD Parent Chat)
twinglema (Jul 1, 2010 7:45:52 PM)
hi anna
anna (Jul 1, 2010 7:46:00 PM)
Hi K
twinglema (Jul 1, 2010 7:46:10 PM)
another hot day here
twinglema (Jul 1, 2010 7:46:16 PM)
how are you?
anna (Jul 1, 2010 7:46:17 PM)
read about your bad week so far
twinglema (Jul 1, 2010 7:46:23 PM)
yeah.
twinglema (Jul 1, 2010 7:46:31 PM)
she is not the easiest patient
anna (Jul 1, 2010 7:46:34 PM)
don't ask!!!! how is daughter?
twinglema (Jul 1, 2010 7:46:48 PM)
on crutches and a brace but ok
twinglema (Jul 1, 2010 7:46:55 PM)
what happened this week?
anna (Jul 1, 2010 7:47:00 PM)
ok, guess that is lucky
twinglema (Jul 1, 2010 7:47:17 PM)
she is having 3 girls over tonight. were gonna swimm but.....
anna (Jul 1, 2010 7:47:18 PM)
car broke down again--in shop today and tomorrow.
twinglema (Jul 1, 2010 7:47:22 PM)
oh no
twinglema (Jul 1, 2010 7:47:36 PM)
where were you?
anna (Jul 1, 2010 7:47:42 PM)
R and I had planned a musuem trip since it was First Thursday and all museums free
anna (Jul 1, 2010 7:47:56 PM)
well, luckily stuck at home
twinglema (Jul 1, 2010 7:47:57 PM)
was he in the car?
twinglema (Jul 1, 2010 7:48:17 PM)
well at least you werent out on freeway
anna (Jul 1, 2010 7:48:20 PM)
then mechanic made me mad and I had to de-fault to "I'll have my husband call you"
twinglema (Jul 1, 2010 7:48:27 PM)
rats
twinglema (Jul 1, 2010 7:48:41 PM)
i default to i'll have my lawyer husband call you!
anna (Jul 1, 2010 7:48:48 PM)
wanted to do unneccessary work, but hubby put him straight
twinglema (Jul 1, 2010 7:48:59 PM)
men are good for something ;)
anna (Jul 1, 2010 7:49:06 PM)
better for you than my wc repair hubby!
twinglema (Jul 1, 2010 7:49:15 PM)
yeah, lol
twinglema (Jul 1, 2010 7:49:34 PM)
Well H is extremely lucky as she fell 5 feet onto concrete
anna (Jul 1, 2010 7:49:39 PM)
and they say I need new brakes again--I must be very hard on brakes
twinglema (Jul 1, 2010 7:49:45 PM)
i am too
anna (Jul 1, 2010 7:49:54 PM)
oh boy--lucky no concussion
twinglema (Jul 1, 2010 7:49:54 PM)
have them put ceramic ones on
twinglema (Jul 1, 2010 7:50:07 PM)
yeah and she still has youth camp and dance camp
anna (Jul 1, 2010 7:50:23 PM)
will she feel up to them oncrutches?
twinglema (Jul 1, 2010 7:50:40 PM)
welll the doc thinks they are fare nough out that she will be ok
twinglema (Jul 1, 2010 7:50:56 PM)
she will be all better about the time i have surgery
anna (Jul 1, 2010 7:51:02 PM)
good thing
twinglema (Jul 1, 2010 7:51:22 PM)
although saturday she is going to a concert and i may send her in lukes wc
anna (Jul 1, 2010 7:51:36 PM)
and my friend thinks she has to go bankrupt to save her house
twinglema (Jul 1, 2010 7:51:38 PM)
so i am walking all over taking car of her!
twinglema (Jul 1, 2010 7:51:44 PM)
oh no
twinglema (Jul 1, 2010 7:51:54 PM)
but she'll get to stay in it
twinglema (Jul 1, 2010 7:51:55 PM)
?
anna (Jul 1, 2010 7:51:59 PM)
if she fits the wc that is an option to help her recover quicker
twinglema (Jul 1, 2010 7:52:15 PM)
and i am afraid with crowds she may get bumped
anna (Jul 1, 2010 7:52:34 PM)
it is her last resort--she was a credit manager, and hates the idea
anna (Jul 1, 2010 7:52:48 PM)
yes, people usually stay away from a wc
twinglema (Jul 1, 2010 7:52:48 PM)
she is not a credit manager any more?
twinglema (Jul 1, 2010 7:52:52 PM)
obciously
twinglema (Jul 1, 2010 7:53:04 PM)
*obviously
anna (Jul 1, 2010 7:53:14 PM)
no--company went belly up and she is disabled due to on oxygen and in wc
anna (Jul 1, 2010 7:53:36 PM)
worked for 40 years tho
anna (Jul 1, 2010 7:54:18 PM)
their home is too expensive--and too full of junk---but maybe I can help her sell stuff
twinglema (Jul 1, 2010 7:54:58 PM)
good idea
anna (Jul 1, 2010 7:55:06 PM)
they cannot afford to live there and re-fi was denied due to their low income
anna (Jul 1, 2010 7:55:25 PM)
she really needs assisted living
twinglema (Jul 1, 2010 7:55:44 PM)
can she get it?
anna (Jul 1, 2010 7:55:55 PM)
she doesn't want it
twinglema (Jul 1, 2010 7:56:19 PM)
cant really blame her
anna (Jul 1, 2010 7:57:00 PM)
but, so hard to see her unable to clean house or bathe herself---so0me people are not as well off as even poor ol me
anna (Jul 1, 2010 7:57:12 PM)
but, I have more than I need
anna (Jul 1, 2010 7:57:35 PM)
so cannot complain--although I am!
twinglema (Jul 1, 2010 7:57:56 PM)
there were 2 gals at my knee replacement who wanted to go to skilled care
anna (Jul 1, 2010 7:58:10 PM)
could they?
twinglema (Jul 1, 2010 7:58:15 PM)
i am the same way
twinglema (Jul 1, 2010 7:58:21 PM)
i guess they can
anna (Jul 1, 2010 7:58:31 PM)
usually there is a few days there is all
twinglema (Jul 1, 2010 7:58:35 PM)
i worked in one for years-no thank you
twinglema (Jul 1, 2010 7:58:46 PM)
yeah
twinglema (Jul 1, 2010 7:58:50 PM)
but still
anna (Jul 1, 2010 7:59:00 PM)
oh my friends was very nice and didn't smell and had cats
twinglema (Jul 1, 2010 7:59:05 PM)
so aside from car and friend was week ok?
anna (Jul 1, 2010 7:59:27 PM)
hubby's birthday last night so we went out
twinglema (Jul 1, 2010 7:59:39 PM)
oh tell him happy birthday
anna (Jul 1, 2010 7:59:42 PM)
for his present I did something unusual
twinglema (Jul 1, 2010 7:59:56 PM)
hmmmm?
anna (Jul 1, 2010 7:59:58 PM)
I threw out all his old underwear and got him all new
twinglema (Jul 1, 2010 8:00:05 PM)
LOL
twinglema (Jul 1, 2010 8:00:10 PM)
cuz they never do!
anna (Jul 1, 2010 8:00:15 PM)
exactly
anna (Jul 1, 2010 8:00:36 PM)
they feel underwear has to be going on 20 years old I guess
twinglema (Jul 1, 2010 8:00:46 PM)
how true
paper (Jul 1, 2010 8:01:08 PM)
(This user has entered DMD Parent Chat)
anna (Jul 1, 2010 8:01:11 PM)
then I lost my keys
paper (Jul 1, 2010 8:01:13 PM)
hi
twinglema (Jul 1, 2010 8:01:15 PM)
oh no!
anna (Jul 1, 2010 8:01:18 PM)
but car didn't work anyways
twinglema (Jul 1, 2010 8:01:19 PM)
hi paper
anna (Jul 1, 2010 8:01:23 PM)
Hi L
twinglema (Jul 1, 2010 8:01:28 PM)
i will be right back-got to get hannah into wc
anna (Jul 1, 2010 8:02:03 PM)
Paper, your cats eyes looked radio-active--spooky
paper (Jul 1, 2010 8:02:09 PM)
lol
anna (Jul 1, 2010 8:02:26 PM)
R said he had a photo to send you--hope he does
paper (Jul 1, 2010 8:02:37 PM)
her eyes glow everytime when u take her pic
paper (Jul 1, 2010 8:02:41 PM)
oh ok great
anna (Jul 1, 2010 8:02:56 PM)
feeling better now?
matt-p (Jul 1, 2010 8:03:00 PM)
(This user has entered DMD Parent Chat)
paper (Jul 1, 2010 8:03:01 PM)
ya
paper (Jul 1, 2010 8:03:03 PM)
hi matt
anna (Jul 1, 2010 8:03:08 PM)
Hi Matt
matt-p (Jul 1, 2010 8:03:11 PM)
hey all
anna (Jul 1, 2010 8:03:19 PM)
R said he just sent it Paper
anna (Jul 1, 2010 8:03:35 PM)
on your fb page
anna (Jul 1, 2010 8:03:40 PM)
Hi Matt
paper (Jul 1, 2010 8:03:42 PM)
yep just got the thing for it
paper (Jul 1, 2010 8:03:48 PM)
brb ill go look at it
anna (Jul 1, 2010 8:04:00 PM)
How does your garden grow Matt?
matt-p (Jul 1, 2010 8:04:18 PM)
anna twig you all shoulds watch discovery health there is a toddler on there he is the strongest toddler
anna (Jul 1, 2010 8:04:31 PM)
my friend watered her tomato I gave her to death
matt-p (Jul 1, 2010 8:04:36 PM)
its ok need some rain
anna (Jul 1, 2010 8:04:43 PM)
yes, poor guy.
paper (Jul 1, 2010 8:05:09 PM)
lol that it is funny
paper (Jul 1, 2010 8:05:24 PM)
it is so fuzzy he has a glow
anna (Jul 1, 2010 8:05:33 PM)
zombie cats
paper (Jul 1, 2010 8:05:37 PM)
lol
matt-p (Jul 1, 2010 8:06:59 PM)
anna how have you been
anna (Jul 1, 2010 8:07:08 PM)
gotta feed everyone and go to store--hubby volunteered me to fix fruit plate for his work and all I have is raisins
paper (Jul 1, 2010 8:07:27 PM)
lol safe trip anna
anna (Jul 1, 2010 8:07:28 PM)
my car is in shop--won't start without jump--battery being drained
matt-p (Jul 1, 2010 8:07:51 PM)
ops
matt-p (Jul 1, 2010 8:08:01 PM)
the altenator has died
anna (Jul 1, 2010 8:08:11 PM)
weather not so great here either--everyone is getting depressed it seeems
anna (Jul 1, 2010 8:08:19 PM)
no, alternator is fine
matt-p (Jul 1, 2010 8:08:50 PM)
that or the starter is weak
anna (Jul 1, 2010 8:08:52 PM)
shop tried to take advantage of me as a woman so had to get hubby
matt-p (Jul 1, 2010 8:09:38 PM)
no need to get hubby just take it elseware
anna (Jul 1, 2010 8:10:06 PM)
hubby was given name of shop as being honest shop
anna (Jul 1, 2010 8:10:20 PM)
you mean tow it elsewhere lol
matt-p (Jul 1, 2010 8:10:21 PM)
wow
anna (Jul 1, 2010 8:10:51 PM)
anyway, sorry gotta go for now--hope to bbl but no guarantees. have a nice chat.
matt-p (Jul 1, 2010 8:10:51 PM)
well what ever it takes i have no use for a cheat shop
matt-p (Jul 1, 2010 8:11:06 PM)
you be safe anna
anna (Jul 1, 2010 8:11:31 PM)
ty--U2 y'all. will stay in until it kicks me out if not back soon
matt-p (Jul 1, 2010 8:11:44 PM)
ok
paper (Jul 1, 2010 8:11:46 PM)
k
matt-p (Jul 1, 2010 8:12:08 PM)
is twig here
paper (Jul 1, 2010 8:12:20 PM)
think so
paper (Jul 1, 2010 8:12:58 PM)
hey t
matt-p (Jul 1, 2010 8:13:15 PM)
hey twig how you all been
twinglema (Jul 1, 2010 8:13:43 PM)
back
twinglema (Jul 1, 2010 8:13:49 PM)
boy that was fun anna
twinglema (Jul 1, 2010 8:14:57 PM)
oops shes gone
paper (Jul 1, 2010 8:15:01 PM)
what u been up to t
twinglema (Jul 1, 2010 8:15:01 PM)
how are you 2?
paper (Jul 1, 2010 8:15:04 PM)
i am ok
matt-p (Jul 1, 2010 8:15:12 PM)
doing ok here
twinglema (Jul 1, 2010 8:15:26 PM)
my daughter fell off a broken slide ladder and sprained her ankle
paper (Jul 1, 2010 8:15:34 PM)
ouch
matt-p (Jul 1, 2010 8:15:38 PM)
oh no
paper (Jul 1, 2010 8:15:46 PM)
i tell u if it isnt one thing it is another
twinglema (Jul 1, 2010 8:15:49 PM)
and she is very frustrated and crying cuz she wants to walk on it
matt-p (Jul 1, 2010 8:16:00 PM)
will she be ok
twinglema (Jul 1, 2010 8:16:03 PM)
yes
twinglema (Jul 1, 2010 8:16:21 PM)
she had palnned on having friends over and think that makes her feel worse instead of better
matt-p (Jul 1, 2010 8:16:30 PM)
how old is she
twinglema (Jul 1, 2010 8:16:32 PM)
14
twinglema (Jul 1, 2010 8:16:43 PM)
so all is drama!
paper (Jul 1, 2010 8:16:55 PM)
lol
twinglema (Jul 1, 2010 8:17:08 PM)
her friends took her up to park in a wheelchair
paper (Jul 1, 2010 8:17:16 PM)
lol
matt-p (Jul 1, 2010 8:17:38 PM)
we just got back from boat race
twinglema (Jul 1, 2010 8:17:42 PM)
fun
matt-p (Jul 1, 2010 8:18:03 PM)
getting things set upp for me to go
twinglema (Jul 1, 2010 8:18:04 PM)
hey matt i'm gonna get 4 tomatoes out of my patio garden tomorrow
paper (Jul 1, 2010 8:18:08 PM)
well guys i need to get so have a good weekend
twinglema (Jul 1, 2010 8:18:12 PM)
ok paper
matt-p (Jul 1, 2010 8:18:13 PM)
great
twinglema (Jul 1, 2010 8:18:16 PM)
happy fourth
paper (Jul 1, 2010 8:18:28 PM)
to u too
matt-p (Jul 1, 2010 8:18:31 PM)
happy fourth
paper (Jul 1, 2010 8:18:32 PM)
night
paper (Jul 1, 2010 8:18:35 PM)
(This user has left DigiChat)
twinglema (Jul 1, 2010 8:18:35 PM)
nite
twinglema (Jul 1, 2010 8:18:52 PM)
cant believe tomorrow is jusly
twinglema (Jul 1, 2010 8:18:55 PM)
july
matt-p (Jul 1, 2010 8:19:10 PM)
we have got two qt of cherry maters andabout 12 big one
matt-p (Jul 1, 2010 8:19:34 PM)
oh and did i tell you about the zucinie
twinglema (Jul 1, 2010 8:19:35 PM)
well i only have 2 plants
twinglema (Jul 1, 2010 8:19:43 PM)
ack zucchini
matt-p (Jul 1, 2010 8:19:52 PM)
thats good for 2 plants
matt-p (Jul 1, 2010 8:20:12 PM)
we have pulled about 40 them buggers
matt-p (Jul 1, 2010 8:20:38 PM)
and 30 or so the yellow summer squash
matt-p (Jul 1, 2010 8:21:05 PM)
when are you getting your knee fixed
twinglema (Jul 1, 2010 8:21:13 PM)
do you selll them at a farmers market?
matt-p (Jul 1, 2010 8:21:37 PM)
not had to so far
matt-p (Jul 1, 2010 8:21:59 PM)
everything has been spokein for with the stores
matt-p (Jul 1, 2010 8:22:55 PM)
have 4 stores here that have been buying everything
matt-p (Jul 1, 2010 8:23:12 PM)
and they have been comeing to pick it up too
twinglema (Jul 1, 2010 8:24:25 PM)
awesome
matt-p (Jul 1, 2010 8:24:34 PM)
i know
matt-p (Jul 1, 2010 8:24:45 PM)
its been to good to be true
twinglema (Jul 1, 2010 8:25:17 PM)
God is good
matt-p (Jul 1, 2010 8:26:35 PM)
i did have a church need some stuff for a family and gave them some summer squash and zucinie
twinglema (Jul 1, 2010 8:27:29 PM)
that is good of you
matt-p (Jul 1, 2010 8:27:39 PM)
not bragging but all the stores had what they wanted and did not want it to waste
twinglema (Jul 1, 2010 8:27:40 PM)
its hard for poor people to get fresh stuff
rayla (Jul 1, 2010 8:27:47 PM)
(This user has entered DMD Parent Chat)
twinglema (Jul 1, 2010 8:27:52 PM)
hi rayla
twinglema (Jul 1, 2010 8:27:58 PM)
how are you?
matt-p (Jul 1, 2010 8:28:03 PM)
hey rayla
rayla (Jul 1, 2010 8:28:08 PM)
Hello
rayla (Jul 1, 2010 8:28:33 PM)
Doing okay
twinglema (Jul 1, 2010 8:28:33 PM)
in case your memory is as bad as min, i have a 13 year old dmder
matt-p (Jul 1, 2010 8:28:39 PM)
twing its not hard now i will give to them when i can
twinglema (Jul 1, 2010 8:28:41 PM)
*mine
twinglema (Jul 1, 2010 8:28:50 PM)
good matt
matt-p (Jul 1, 2010 8:29:10 PM)
rayla are you new
rayla (Jul 1, 2010 8:29:21 PM)
I have 13 year old, too.
twinglema (Jul 1, 2010 8:29:42 PM)
he doing ok this week?
twinglema (Jul 1, 2010 8:29:48 PM)
and you of course
rayla (Jul 1, 2010 8:30:00 PM)
No, just haven't been here for awhile.
matt-p (Jul 1, 2010 8:30:26 PM)
great
matt-p (Jul 1, 2010 8:30:32 PM)
nice to meet you
rayla (Jul 1, 2010 8:30:52 PM)
Same here, Matt
rayla (Jul 1, 2010 8:31:32 PM)
What is your story?
matt-p (Jul 1, 2010 8:31:33 PM)
rayla i have sci and early onset parkinsons
twinglema (Jul 1, 2010 8:31:43 PM)
how is he doing rayla?
rayla (Jul 1, 2010 8:32:15 PM)
Getting very weak.
matt-p (Jul 1, 2010 8:32:16 PM)
i am in w/c
twinglema (Jul 1, 2010 8:32:25 PM)
so sorry
twinglema (Jul 1, 2010 8:32:31 PM)
this is such a hard time
twinglema (Jul 1, 2010 8:32:46 PM)
does he get around in a wc
twinglema (Jul 1, 2010 8:32:56 PM)
i do remeber you from chat a while back
rayla (Jul 1, 2010 8:33:05 PM)
Yes it is! Yes.
twinglema (Jul 1, 2010 8:33:10 PM)
anna was here but is feeding family
twinglema (Jul 1, 2010 8:33:33 PM)
my sons are at camp so i am having a break
rayla (Jul 1, 2010 8:33:35 PM)
Sorry I missed her.
twinglema (Jul 1, 2010 8:33:42 PM)
she ususally comes back
rayla (Jul 1, 2010 8:33:57 PM)
How are they doing?
twinglema (Jul 1, 2010 8:34:23 PM)
R is not working right now but prob will before long. she is good but her car keeps dying
matt-p (Jul 1, 2010 8:34:37 PM)
rayla if you are on facebook and want to put a face to the name you can see me there in my w/c
twinglema (Jul 1, 2010 8:34:47 PM)
you can always read transcripts to catch up
rayla (Jul 1, 2010 8:35:06 PM)
I am on facebook
matt-p (Jul 1, 2010 8:35:07 PM)
i am very lucky i have a fancy w/c
twinglema (Jul 1, 2010 8:35:36 PM)
i think everyone is on facebookl
anna (Jul 1, 2010 8:35:42 PM)
Saw Rayla here and had to come in before I go to store
matt-p (Jul 1, 2010 8:35:52 PM)
i will pm you my facebook name
rayla (Jul 1, 2010 8:36:07 PM)
How old are you matt? My son is Matt, too.
twinglema (Jul 1, 2010 8:36:13 PM)
ty anna
matt-p (Jul 1, 2010 8:36:18 PM)
matt phillips hanover indiana
twinglema (Jul 1, 2010 8:36:29 PM)
send hubby to store, hes the one who volunteerd
rayla (Jul 1, 2010 8:36:29 PM)
Hi, Anna.
anna (Jul 1, 2010 8:36:39 PM)
Rayla, it has been awhile! What is your son doing in terms of changes?
anna (Jul 1, 2010 8:37:33 PM)
I have to drive little sports car to grocery and cram 10 bags(reusable of course) in
rayla (Jul 1, 2010 8:37:33 PM)
Getting very weak and has developed a heart murmer
twinglema (Jul 1, 2010 8:37:45 PM)
is he taking anything for his heart?
matt-p (Jul 1, 2010 8:37:53 PM)
that strongest toddler thing on discovery health is talking about what this kid has to offer to the dmd
anna (Jul 1, 2010 8:37:54 PM)
heart murmurs are very common--in fact I have one
twinglema (Jul 1, 2010 8:37:58 PM)
i do too
rayla (Jul 1, 2010 8:37:59 PM)
not yet
matt-p (Jul 1, 2010 8:38:13 PM)
i have one too
twinglema (Jul 1, 2010 8:38:17 PM)
we have had luke on enalapril for awhile
rayla (Jul 1, 2010 8:38:42 PM)
I have heart problems myself
anna (Jul 1, 2010 8:38:42 PM)
my son is 29 now and also takes Digoxin and Coreg
anna (Jul 1, 2010 8:39:50 PM)
what the kid has to offer to the MDA? or in terms of building muscles within dmd?
matt-p (Jul 1, 2010 8:40:35 PM)
they are hopeing that his disorder helps find someway to help dmd
anna (Jul 1, 2010 8:40:39 PM)
BIG controversy going on in DMD community----look for the group on fb called STS Treatment and watch fur fly
twinglema (Jul 1, 2010 8:40:47 PM)
yep
twinglema (Jul 1, 2010 8:41:12 PM)
explain it in englesh anna
matt-p (Jul 1, 2010 8:41:19 PM)
the kid is only three but he is mussle bound to the hilt
anna (Jul 1, 2010 8:41:19 PM)
well, hope they check his dystrophin levels
anna (Jul 1, 2010 8:41:32 PM)
to compare
twinglema (Jul 1, 2010 8:41:41 PM)
he is facing serious issues as he ages
twinglema (Jul 1, 2010 8:42:10 PM)
what exactly is STS?
anna (Jul 1, 2010 8:42:19 PM)
yes, wonder how his heart is since that is a muscle
twinglema (Jul 1, 2010 8:42:30 PM)
thats what the docs were worried about
anna (Jul 1, 2010 8:42:51 PM)
why are you asking me Twingle? not the scientific sort--just interested in reading all the info
twinglema (Jul 1, 2010 8:42:52 PM)
i saw it along time ago and he has some thing way to high dont rememebr what
anna (Jul 1, 2010 8:43:10 PM)
still here Rayla?
twinglema (Jul 1, 2010 8:43:17 PM)
cuz i figured you had read it and i havent!
rayla (Jul 1, 2010 8:43:21 PM)
yes
anna (Jul 1, 2010 8:44:02 PM)
it is interesting reading about dmd Mom who took son to Texas for some sort of electrical stimulation therapy and says his dmd is improved
anna (Jul 1, 2010 8:44:13 PM)
time will tell--wish it was that easy
twinglema (Jul 1, 2010 8:44:24 PM)
wish i could wave a magic wand
rayla (Jul 1, 2010 8:44:34 PM)
amen
anna (Jul 1, 2010 8:44:40 PM)
all us moms do
twinglema (Jul 1, 2010 8:44:42 PM)
some moms on the fb dmd thing have there kids on every supplement ever mentioned
twinglema (Jul 1, 2010 8:45:06 PM)
i was always afraid cuz they are not regulated
anna (Jul 1, 2010 8:45:09 PM)
yes---and take their kids to CInncinnati
twinglema (Jul 1, 2010 8:45:22 PM)
what is in cinncinnati?
twinglema (Jul 1, 2010 8:45:40 PM)
is sts the stimulatuion thing?
anna (Jul 1, 2010 8:46:04 PM)
a Dr Wong--their are groups on the PPMD discussion site all about it, as well as STS treatment too
twinglema (Jul 1, 2010 8:46:19 PM)
i'll have to read up i guess
anna (Jul 1, 2010 8:46:33 PM)
but, we are doing okay I think as we are doing since son is 29 and able to work
twinglema (Jul 1, 2010 8:46:39 PM)
amen
rayla (Jul 1, 2010 8:46:52 PM)
ditto
anna (Jul 1, 2010 8:47:06 PM)
the STS doc is in Texas
twinglema (Jul 1, 2010 8:47:11 PM)
as far as i know not even dr wong can stop dmd
anna (Jul 1, 2010 8:47:19 PM)
exactly
matt-p (Jul 1, 2010 8:47:24 PM)
rayla where are you from
rayla (Jul 1, 2010 8:47:32 PM)
WV
matt-p (Jul 1, 2010 8:47:40 PM)
neat
rayla (Jul 1, 2010 8:47:48 PM)
You?
twinglema (Jul 1, 2010 8:47:51 PM)
ok this is random but i heard today we had 14 rainy days in june
matt-p (Jul 1, 2010 8:47:55 PM)
that state is so pretty with the mts and all
twinglema (Jul 1, 2010 8:47:59 PM)
nebraska here
anna (Jul 1, 2010 8:48:12 PM)
our weather is awful so far in Seattle area
twinglema (Jul 1, 2010 8:48:17 PM)
may as well move to where anna is
anna (Jul 1, 2010 8:48:28 PM)
yes!
twinglema (Jul 1, 2010 8:48:44 PM)
hope H is staying off her foot at park
twinglema (Jul 1, 2010 8:48:50 PM)
she is very teary
matt-p (Jul 1, 2010 8:48:57 PM)
i would move there in a new york second
anna (Jul 1, 2010 8:49:00 PM)
haha--isn't she a girl teen??
twinglema (Jul 1, 2010 8:49:03 PM)
yes
twinglema (Jul 1, 2010 8:49:09 PM)
and a frustrated one at that!
twinglema (Jul 1, 2010 8:49:27 PM)
and her sprain WILL heal
anna (Jul 1, 2010 8:49:42 PM)
drama is wherever a teen girl is--my daughter broke a window and kacked a hole in her wall about that age
matt-p (Jul 1, 2010 8:50:17 PM)
dang this kid just did 17 situps in one min
twinglema (Jul 1, 2010 8:50:21 PM)
at least her friends like me lol
anna (Jul 1, 2010 8:50:25 PM)
and she turned out well and is now an RN and a mom
twinglema (Jul 1, 2010 8:50:34 PM)
there is hope ;)
anna (Jul 1, 2010 8:50:39 PM)
yes there is
anna (Jul 1, 2010 8:51:09 PM)
I refuse to pay $3.99 per pound of cherries!!
twinglema (Jul 1, 2010 8:51:12 PM)
anything we can do rayla?
twinglema (Jul 1, 2010 8:51:22 PM)
are you at the store?!
rayla (Jul 1, 2010 8:51:26 PM)
pray
matt-p (Jul 1, 2010 8:51:32 PM)
they just said he is 3 but has the core stringth of a 6 year old
twinglema (Jul 1, 2010 8:51:33 PM)
you got it
anna (Jul 1, 2010 8:51:44 PM)
no--just checking ads to decide which of 2 close stores to go to
rayla (Jul 1, 2010 8:51:48 PM)
thanks
twinglema (Jul 1, 2010 8:51:56 PM)
that is why i am here!
anna (Jul 1, 2010 8:51:58 PM)
closer the better
twinglema (Jul 1, 2010 8:52:06 PM)
send hubby!
rayla (Jul 1, 2010 8:52:46 PM)
It helps so much to talk to you guys
anna (Jul 1, 2010 8:52:50 PM)
I need too many other things and he is the worst at a store--when R and I were away from him he bought the very same things each time and never looked at the sales
twinglema (Jul 1, 2010 8:52:57 PM)
glad to hear rayla
twinglema (Jul 1, 2010 8:53:10 PM)
did your son do camp this year?
anna (Jul 1, 2010 8:53:17 PM)
my son has a new thingy to hold his hand on the control now on his wc
rayla (Jul 1, 2010 8:53:23 PM)
no
twinglema (Jul 1, 2010 8:53:25 PM)
hubby make it?
anna (Jul 1, 2010 8:53:34 PM)
it used to fall off the armrest a loot
twinglema (Jul 1, 2010 8:53:43 PM)
a lot too i bet
twinglema (Jul 1, 2010 8:53:58 PM)
he ever go to camp?
anna (Jul 1, 2010 8:54:04 PM)
hubby made it out of parts at work--one advantage to having wc repairman in the house
twinglema (Jul 1, 2010 8:54:13 PM)
absolutely
anna (Jul 1, 2010 8:54:20 PM)
suddenly I am aboot Canadian?
twinglema (Jul 1, 2010 8:54:35 PM)
i guess!
rayla (Jul 1, 2010 8:54:40 PM)
No, he has a lot of health issues.
matt-p (Jul 1, 2010 8:54:55 PM)
think that would be neat to do a camp if they had one for peeps my age
twinglema (Jul 1, 2010 8:54:59 PM)
they can usually handle about anythin at camp
anna (Jul 1, 2010 8:55:03 PM)
does he have the Cough Assist Rayla?
twinglema (Jul 1, 2010 8:55:32 PM)
one family forgot formula for their son-a four hour trip back home and lucked out cuz walmart had it!
anna (Jul 1, 2010 8:56:06 PM)
we are holding off the tube feeding this week cause R's tube site is not looking good again
anna (Jul 1, 2010 8:56:46 PM)
I am still venting air out of his tummy twice a day and giving him Miralax into it
rayla (Jul 1, 2010 8:56:53 PM)
I have been trying to get a cough assist device. How can I obtain one? Believe it or not nobody in this area carries one.
rayla (Jul 1, 2010 8:57:28 PM)
It's unreal
anna (Jul 1, 2010 8:57:29 PM)
well, you need one! doctor can write script and you can call company to find out where to get one
matt-p (Jul 1, 2010 8:57:30 PM)
wow
anna (Jul 1, 2010 8:57:51 PM)
maybe MDA loan closet has one extra?
rayla (Jul 1, 2010 8:58:10 PM)
I have script,
rayla (Jul 1, 2010 8:58:33 PM)
none at MDA loan closet
anna (Jul 1, 2010 8:58:36 PM)
I called the President of one company once when I wanted his product--and he found where I could get it
matt-p (Jul 1, 2010 8:59:01 PM)
anna what brand is R's
anna (Jul 1, 2010 8:59:04 PM)
your RT might know what to do to get one?
anna (Jul 1, 2010 8:59:10 PM)
Emerson
rayla (Jul 1, 2010 8:59:44 PM)
This issue is making me quite angry
matt-p (Jul 1, 2010 8:59:55 PM)
rayla google emerson and get with company rep and rep will find dealer in your area
anna (Jul 1, 2010 9:00:03 PM)
or your MDA clinic? yes, he needs one for any cold/choking incidents
rayla (Jul 1, 2010 9:00:17 PM)
Thank you, I will.
anna (Jul 1, 2010 9:00:32 PM)
it has saved my son from aspiration pneumonia more than once
twinglema (Jul 1, 2010 9:00:41 PM)
your mda clinic should know how to get one
rayla (Jul 1, 2010 9:01:06 PM)
My son has had peumonia twice
anna (Jul 1, 2010 9:01:19 PM)
mine never has PTL
rayla (Jul 1, 2010 9:01:32 PM)
amen
twinglema (Jul 1, 2010 9:01:45 PM)
who wrote the script? they shoudl know where to get it
anna (Jul 1, 2010 9:01:46 PM)
I am scared of any cold as it can develope into pneumonia so fast in out guys
anna (Jul 1, 2010 9:01:56 PM)
our
rayla (Jul 1, 2010 9:01:59 PM)
YES!
anna (Jul 1, 2010 9:02:08 PM)
so, I cannot type OR spell tonight
twinglema (Jul 1, 2010 9:02:25 PM)
cuz you have fruit on your mind anna
anna (Jul 1, 2010 9:03:02 PM)
but sorry, must go to store---now that sounds bad. I will make hubby cut it up and arrange artistically tho
twinglema (Jul 1, 2010 9:03:11 PM)
good for you'
twinglema (Jul 1, 2010 9:03:28 PM)
have a great fourth of july!
anna (Jul 1, 2010 9:03:58 PM)
ty--you all too. Rayla, I will pm you my e-addy before I leave
rayla (Jul 1, 2010 9:04:14 PM)
ok
twinglema (Jul 1, 2010 9:05:03 PM)
brb
anna (Jul 1, 2010 9:05:39 PM)
Goodnight all. Happy Fourth to all.
anna (Jul 1, 2010 9:05:59 PM)
did you get it Rayla?
twinglema (Jul 1, 2010 9:06:06 PM)
back
twinglema (Jul 1, 2010 9:06:07 PM)
night
twinglema (Jul 1, 2010 9:06:19 PM)
any palns anna?
twinglema (Jul 1, 2010 9:06:23 PM)
plans
rayla (Jul 1, 2010 9:06:27 PM)
yes
anna (Jul 1, 2010 9:06:45 PM)
depends on weather-----as usual
anna (Jul 1, 2010 9:06:47 PM)
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rayla (Jul 1, 2010 9:08:10 PM)
twingle, you on facebook?
twinglema (Jul 1, 2010 9:08:13 PM)
yes
twinglema (Jul 1, 2010 9:08:18 PM)
kelly wilson omaha ne
rayla (Jul 1, 2010 9:08:32 PM)
Can I look you up?
twinglema (Jul 1, 2010 9:08:40 PM)
of course!
rayla (Jul 1, 2010 9:08:49 PM)
Great!
twinglema (Jul 1, 2010 9:08:51 PM)
i am on WAY to much
twinglema (Jul 1, 2010 9:09:16 PM)
man teenage girls are giggly
rayla (Jul 1, 2010 9:09:19 PM)
I wish I had more time to devote
twinglema (Jul 1, 2010 9:09:34 PM)
do you have other kids rayla?
rayla (Jul 1, 2010 9:09:55 PM)
Daughter who is 11.
twinglema (Jul 1, 2010 9:10:11 PM)
well you have this to look forward too ;)
matt-p (Jul 1, 2010 9:10:25 PM)
rayla dont run off i have just about got some info for you
rayla (Jul 1, 2010 9:10:41 PM)
okay, matt
twinglema (Jul 1, 2010 9:11:11 PM)
my daughter fell off a slide ladder and sprained her ankle
rayla (Jul 1, 2010 9:11:47 PM)
Oh, sorry to hear that!
twinglema (Jul 1, 2010 9:11:53 PM)
me too!
twinglema (Jul 1, 2010 9:12:04 PM)
she is not most cooperative patient
rayla (Jul 1, 2010 9:12:17 PM)
How old is she?
twinglema (Jul 1, 2010 9:12:33 PM)
if i catch her walking on it one more time i am gonna smack her with her crutches!
twinglema (Jul 1, 2010 9:12:36 PM)
14
twinglema (Jul 1, 2010 9:12:51 PM)
and she has 3 friends over
rayla (Jul 1, 2010 9:13:15 PM)
At 14 she might smack you back. lol
twinglema (Jul 1, 2010 9:13:28 PM)
she cant move fast enough to get me now!
rayla (Jul 1, 2010 9:14:01 PM)
Bless her heart!
twinglema (Jul 1, 2010 9:16:13 PM)
she is drama queen any way
twinglema (Jul 1, 2010 9:16:24 PM)
she fell onto cement so she is very lucky
rayla (Jul 1, 2010 9:16:56 PM)
very much so
rayla (Jul 1, 2010 9:17:32 PM)
At 14 they are all drama queens
twinglema (Jul 1, 2010 9:17:42 PM)
we have no leg luck here- i am having knee relacement july 23
twinglema (Jul 1, 2010 9:17:48 PM)
yes they are
rayla (Jul 1, 2010 9:19:01 PM)
I need one but I keep putting it off. I guess when I can't walk anymore I will have it done.
twinglema (Jul 1, 2010 9:19:46 PM)
i decided better to have bad pain for little while than medium pain all the time
rayla (Jul 1, 2010 9:20:40 PM)
I don't know what is worse.
twinglema (Jul 1, 2010 9:21:23 PM)
all the time pain i think
twinglema (Jul 1, 2010 9:21:45 PM)
you are younger than me i think sorry you have bad knee too
twinglema (Jul 1, 2010 9:22:00 PM)
my son is still doing amazingly well
twinglema (Jul 1, 2010 9:22:04 PM)
he is in co now
matt-p (Jul 1, 2010 9:22:21 PM)
rayla
rayla (Jul 1, 2010 9:22:27 PM)
I bet I'm older than you.
twinglema (Jul 1, 2010 9:22:32 PM)
im 48
rayla (Jul 1, 2010 9:22:37 PM)
Matt?
matt-p (Jul 1, 2010 9:22:38 PM)
you got paper pen ready
twinglema (Jul 1, 2010 9:22:41 PM)
just turned
rayla (Jul 1, 2010 9:24:19 PM)
yes,Matt
matt-p (Jul 1, 2010 9:24:23 PM)
1-800-453-6860
rayla (Jul 1, 2010 9:25:18 PM)
Got it, Matt
matt-p (Jul 1, 2010 9:25:21 PM)
that should be the compant that made R's cough machine
rayla (Jul 1, 2010 9:25:34 PM)
Thank You!
twinglema (Jul 1, 2010 9:25:37 PM)
nice job matt
matt-p (Jul 1, 2010 9:26:16 PM)
its not a nice job yet i am not sure that is right but i did try
rayla (Jul 1, 2010 9:26:41 PM)
Half dead, Twingle 55 in 2 weeks.
twinglema (Jul 1, 2010 9:26:51 PM)
You are not LOL
rayla (Jul 1, 2010 9:27:02 PM)
Lord help me!
twinglema (Jul 1, 2010 9:27:10 PM)
Lord help us all
rayla (Jul 1, 2010 9:27:28 PM)
REALLY!
matt-p (Jul 1, 2010 9:27:30 PM)
when rayla comes back in chat and says that worked and i have one found then i will be happy
rayla (Jul 1, 2010 9:27:55 PM)
Bless you, Matt!
matt-p (Jul 1, 2010 9:28:41 PM)
rayla please add me to facebook and when you have called them and they have got you headed in the right direction let me know
rayla (Jul 1, 2010 9:29:11 PM)
I definitely will!
twinglema (Jul 1, 2010 9:29:50 PM)
you are very sweet matt
matt-p (Jul 1, 2010 9:30:08 PM)
i just hope that numbr dont send you on a monkey chase
rayla (Jul 1, 2010 9:30:16 PM)
Ditto
matt-p (Jul 1, 2010 9:30:48 PM)
twing i try to help when i can
rayla (Jul 1, 2010 9:30:50 PM)
I mean sweet
matt-p (Jul 1, 2010 9:31:28 PM)
it really helps to come in here and chat when i can turn the table and help back i want the chance
matt-p (Jul 1, 2010 9:32:13 PM)
its so nice to have a chat to come to that there is no fighting
twinglema (Jul 1, 2010 9:32:22 PM)
fighting?
rayla (Jul 1, 2010 9:32:41 PM)
It's wonderful that these chats are available.
matt-p (Jul 1, 2010 9:32:49 PM)
i have been to many chats that was running over with drama
twinglema (Jul 1, 2010 9:34:05 PM)
too bad more people do not take advantage of them
rayla (Jul 1, 2010 9:34:05 PM)
Sorry, I have to run. God bless you both. I hope to talk to you soon!
matt-p (Jul 1, 2010 9:34:09 PM)
rayla what kind of chair dose your son have
twinglema (Jul 1, 2010 9:34:13 PM)
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twinglema (Jul 1, 2010 9:34:19 PM)
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twinglema (Jul 1, 2010 9:34:28 PM)
nite, come back soon
rayla (Jul 1, 2010 9:34:34 PM)
manual
rayla (Jul 1, 2010 9:34:40 PM)
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matt-p (Jul 1, 2010 9:34:44 PM)
twing you need the duct tape
twinglema (Jul 1, 2010 9:34:53 PM)
why?
matt-p (Jul 1, 2010 9:35:04 PM)
you bounceing in and out
twinglema (Jul 1, 2010 9:35:07 PM)
i gotta go clean up after the girls
twinglema (Jul 1, 2010 9:35:08 PM)
yep
matt-p (Jul 1, 2010 9:35:18 PM)
ok you all be safe
matt-p (Jul 1, 2010 9:35:28 PM)
and have a good 4th
twinglema (Jul 1, 2010 9:36:12 PM)
u 2
twinglema (Jul 1, 2010 9:36:22 PM)
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matt-p (Jul 1, 2010 9:36:23 PM)
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