There is a wealth of caregiver-related information and support available through MDA – including helpful articles in Quest magazine, a wide range of print materials and the myMDA online community.  MDA-sponsored support groups are also available throughout the country.  Click here to find the MDA office serving your area.

Quest Magazine


MDA Print Materials

  • MDA ALS Caregiver’s Guide
    http://www.als-mda.org/Publications/alscare/
    Although this Caregiver’s Guide is specific to ALS, many of the caregiver tips shared are universal for all caregivers.

  • 101 Helpful Hints to “Help-with-Ease” for Patients with Neuromuscular Disease
    http://www.mda.org/publications/101hints/
    This guide is directed toward individuals with neuromuscular disease, but the tips contained within for dressing, grooming, eating and more can be incredibly helpful for caregivers as well.

  • Learning to Live with Neuromuscular Disease: A Message for Parents
    http://www.mda.org/publications/learning/
    This message to parents includes topics such as the importance of reaching out, when family doesn't understand and more.

  • Preparing for Emergencies: A Checklist for People with Neuromuscular Diseases
    http://www.mda.org/publications/emergency_checklist.pdf
    Valuable information about planning ahead for emergencies is included in this brochure.

  • Meals for Easy Swallowing
    http://www.als-mda.org/publications/meals/
    In addition to recipes for easy-to-swallow foods, swallowing tips and techniques are included in this guide for individuals with ALS.

  • A Teachers Guide to Neuromuscular Disease
    http://mda.org/publications/tchrdmd/
    An excellent resource for teachers who have children and adolescents affected by a neuromuscular disease in their classroom, and a helpful guide for parents navigating educational advocacy issues.

  • Hey! I’m Here, Too
    http://mda.org/publications/hey/
    A booklet to help siblings of boys with muscular dystrophy explore how they feel about themselves, their brothers and their families.



My MDA
Visit the myMDA online community to share experiences, exchange helpful tips and resources, and cultivate new friendships with other caregivers.  You must be 18 or older to participate.  Registration is free.



The National Family Caregivers Association is an organization that educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.


MDA is proud to serve as an endorsing organization for National Family Caregivers Month, as we honor all caregivers.