CURRENT ISSUE

Fall 2011
2011 National Neuromuscular Transitions Summit
MDA Champion: Aaron Bates
This Year's Fly Out Was Met with Great Success!
Don't Forget About These Resources
NIAMS Congressional Briefing
High School and College Grads — A Journey of Success and Independence
The Road Map to Independence

ARCHIVES

April-May 2011
Clinical Trials: What Do You Need to Know?
The Voice of Mom
MDA Champion: Allison Kassir
4•ALS: MDA Teams Up with Major League Baseball to Raise ALS Awareness
NIAMS Celebrates 25th Anniversary
Health Reform Update
ALS Outreach Notes
NIH Hiring Event for People with Disabilities
New Outreach Tools from the U.S. Department of Labor

February-March 2011
2010 MDA Fly Out — A Great Success — 2011 Plans Under Way
Meet Robyn Powell: Equal Rights Center
Competitive Bidding Update
MDA Sponsoring Study of Financial Impact of Neuromuscular Disease on Families
Using Your Voice: New Survey Provides Clinic Feedback
TSA Tests New Imaging Software to Enhance Passenger Privacy
Employment and Independence
Applying Online for Disability Benefits

July-August 2010
MDA Fly Out 2010 ~ Success in Every State ~
Summer Air Travel: The Keys to Success
MDA Champion: Senator Roger Wicker (R-MS)
Good to Know: Four Current Laws
The Competitive Bidding Repeal Act (H.R. 3790)
New Members to Join the MDA National Task Force
ALS Awareness Success
Education: Great IDEAs and Great College Experiences

May 2010
Miss Umali Goes to Washington!
May is National ALS Awareness Month
MDA Champion: Rep. Eliot Engel (D-NY, 17th District)
Public Webinar Series
Sharing Your Voice Online

April 2010
Health Care - What's In It For You
NIH-FDA Leadership Council Announced
MDA Champion: Meet Jeff Cupps
Our Community — Our Voice
Community Resources: Employment and Benefits
Cash and Counseling Program Offers Medicaid Consumers Control
SMA Update
New Member Added to NIAMS Council
Advocacy 101

February 2010
'Extraordinary' Success
MDA's New Care Coordination Service — myMuscleTeam
Meet Kelly Crush
Attention parents of children with DMD, BMD, CMD & SMA
Trailblazer Triumphs!
CMD and Leigh Syndrome Now Included in Compassionate Allowances Conditions
Research Update
The Road to College: A GPS for Students with Neuromuscular Diseases

January 2010
Jet-Setting in 2010
Air Travel Concerns Continue
Meet Jen Onsum
Resolutions for 2010
MDA National Task Force
Trailblazers Update on myMDA
Update: SMA Treatment Acceleration Act

September 2009
Preparing for College Success
Campus Accessibility Considerations
Meet Senator John Barrasso (R-WY)
Meet Chris Rosa
Advocacy in Our Schools: Making the Most of IEP and 504 Plans
The Inaugural MDA Fly Out – A Tremendous Success
Update: SMA Treatment Acceleration Act
MDA is Keeping a Close Eye on Health Reform
Special Concerns for Flu Season
H1N1 Vaccinations
Boston Becker MD Conference a Hit

June-July 2009
Meet Angela Wrigglesworth
Meet Senator Johnny Isakson (R-GA)
Finding Our Voice
Summer Program Gives Taste of College Life
“How Did You Spend Your Summer Vacation?” - Youth Leadership Forums
SMA Treatment Acceleration Act Introduced in Congress
New Advocacy Tools in MDA’s Web Site
MyMDA: The New Place to Be Online
ALS Awareness in July