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Advocacy News

  • Press Release: ALS Community Tells FDA 'We Have No Time To Waste,' Urges Changes In Trial Design And Review Process
    02/25/2013
  • FDA To Webcast Its Public Hearing About ALS
    02/21/2013
  • MD CARE Partner Sign On Letter
    02/11/2013
  • FDA Convenes ALS Public Hearing February 25
    01/30/2013
  • MDA Building ‘Transitional Freedom’ Partnerships
    12/06/2012
  • MDA and ALSA Partner to Nominate ALS as Disease Area for FDA’s Patient-Focused Drug Development Initiative
    11/02/2012
  • MDA Champions Nomination of Pediatric-Onset Neuromuscular Diseases as a Critical Disease Area for FDA's Patient-Focused Drug Development Initiative
    11/02/2012
  • New York Post Awards Top Honor to National Disability Leader
    10/17/2012
  • MDA Urges Legislators to Speed Up Approval of Rare Disease Drugs
    05/24/2012
  • ABLE Act Would Help Families Plan for Child's Financial Future
    01/17/2012
  • MDA's National Summit Focuses on 'Transitional Freedom'
    01/01/2012
  • MDA Applauds Congress for Including Two Neuromuscular Diseases in Pediatric Research Bill
    08/23/2012
  • Third Annual Becker Muscular Dystrophy Conference
    07/20/2011
  • National Institute of Child Health and Human Development at the NIH Funds a Pilot Study of Newborn Screening for Spinal Muscular Atrophy
    05/06/2011
  • Advocacy Update for SMA Community — Priorities for 112th Congress
    04/28/2011
  • Funding Extension Brings Hope for Resolution
    03/11/2011
  • Take 5! Call to Action — Federal Research Spending in Jeopardy
    02/16/2012
  • SMA Grassroots Update
    10/26/2010
  • FDA/NIH Meeting Announcement
    06/04/2010
  • SMA Treatment Acceleration Act Update
    04/20/2010
  • Congenital Muscular Dystrophy Now Included in Compassionate Allowances Conditions
    02/11/2010

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Advocacy News

  • Press Release: ALS Community Tells FDA 'We Have No Time To Waste,' Urges Changes In Trial Design And Review Process
    02/25/2013
  • FDA To Webcast Its Public Hearing About ALS
    02/21/2013
  • MD CARE Partner Sign On Letter
    02/11/2013
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Muscular Dystrophy Association — USA
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