State Personal Achievement Award Recipients

Initiated in 1992, the national awards program recognizes the accomplishments and community service of adults over 18 with disabilities related to any of the diseases in MDA’s program.

The awards were renamed in honor of Robert Ross, MDA’s longtime chief executive, who died in June 2006. Ross created the Personal Achievement Award program to educate the public that disability is no obstacle to accomplishment.

Each local MDA chapter selects a local recipient; all local recipients automatically are considered for a state award. Then, all state award recipients are considered for the national award, which is announced every year on MDA's Labor Day weekend show.

Click on any state to view a bio of its 2011 PAA recipient (ages reflect the recipient's age at the time the award was given in 2011).

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  • Ralph Robinson, 45
    Becker muscular dystrophy
    Boston, Mass.

    Robinson, who is affected by Becker muscular dystrophy (BMD) and uses a power wheelchair for mobility, is an outspoken advocate for himself and others with disabilities. He speaks frequently at his church and other organizations about disability rights. He also is an active volunteer with MDA, including the Telethon and the Boston ALS Walk on the Esplanade. He enjoys drawing, painting, playing video games and watching sports on TV.

  • Jori Reijonen, 44
    Charcot-Marie-Tooth disease
    Richland, Mich.

    Jori Reijonen learned in 2009 that she has Charcot-Marie-Tooth disease (CMT), a disease of the peripheral nerves that causes muscle weakness and lack of sensation, primarily in the hands and feet. She walks with the help of orthotic braces. Reijonen, who holds a doctorate in clinical psychology, decided to learn everything she could about her disease. By 2010, she was named "neuromuscular diseases editor" of BellaOnline, a website for women. Shortly after receiving her diagnosis, she started a support group for others with CMT. Reijonen currently works from home teaching online courses in psychology for the University of Phoenix.

  • Eric Tulberg, 22
    Duchenne muscular dystrophy
    White Bear Lake, Minn.

    Paul Tulberg, who uses a power chair for mobility and has limited use of his arms, is passionate about sports. Affected by Duchenne muscular dystrophy (DMD), Tulberg participated in adaptive athletics in high school and lettered in three sports, in addition to winning all-conference and other honors. He is currently studying physical education and coaching at Southwest Minnesota State University and hopes to work as a youth baseball coach, or some other sports-related job, after graduation. He also has been active with MDA for many years, attending summer camp as a youngster and later volunteering at his local office and at MDA events.

  • Michelle Williams, 37
    Charcot-Marie-Tooth disease
    Jackson, Miss.     

    Michelle Williams worked 10 years as a medical technologist for health care institutions in Mississippi and Louisiana before her disease made it impossible for her to continue. In addition to helping her husband care for their four children — three of whom have the same disease she does — Williams shifted her energies to community service and helping others with neuromuscular diseases. In addition to being very active in her church, where she is president of the Married Couples Ministry and a member of the choir, Williams is a strong supporter of MDA’s fundraising and services programs. She involves her children’s schools in fundraising efforts and appears on MDA's Labor Day show to help spread awareness of MDA’s dual missions of help and hope.

  • Glen Houston, 70
    Amyotrophic lateral sclerosis
    St. Charles, Mo.

    In 2003, shortly after retiring from a 37-year career as an engineer at Boeing, Glen Houston received a diagnosis of ALS. With his wife, Linda, he was active in MDA/ALS support groups, providing a positive and helpful resource for those with recent diagnoses. He enjoyed sharing strategies for daily living and adaptive inventions that he has devised. Active with his church, Houston also spent as much time as possible with his two grandsons. Houston passed away Aug. 9, 2011.

  • Leanne Beers, 37
    Dejerine-Sottas disease
    Missoula, Mont.

    Leanne Beers has Dejerine-Sottas disease (DS), which causes muscle weakness and atrophy in the lower legs, forearms, feet and hands, as well as reduced muscle tone and loss of sensation in the extremities. She uses a power wheelchair for mobility. Beers — who in 2007 earned a master's degree in public relations in health communications from Montana State University in Billings — has two children, one of whom also has DS. Beers is an independent consultant who, among other things, facilitates support groups for people with brain injuries and assists individuals in accessing state and federal assistance programs. In addition, she is a service dog trainer and board member for Karosel Service Dogs (she has two service dogs herself), and educates the community about laws regarding service animals. Beers serves on the board of directors of Summit for Independent Living, and volunteers with the North America Riding for the Handicap Association. She is very active with the Muscular Dystrophy Association, participating in fundraising and public relations activities, and offering support for individuals and families.

  • Donna Tonderum, 42
    Myotonic muscular dystrophy
    Elkhorn, Neb.

    Tonderum received a diagnosis of myotonic muscular dystrophy (MMD) while still in the Air Force and was honorably discharged due to her disability. She went on to graduate from Creighton University in Omaha with a law degree and currently is a private-practice attorney specializing in criminal law. She and her husband have five children ranging in age from 9 months to 12 years; all but one is adopted. A supporter of open adoption, Tonderum speaks frequently on the subject. She and her family also are active in MDA events, including Muscle Walks, Shamrocks, summer camp and the annual gala.

  • Frank Harris, 60
    Myasthenia gravis
    Las Vegas, Nev.

    Although Frank Harris learned he has myasthenia gravis (MG) only two years ago, he is no stranger to muscle disease, having lost both a son and a step-son to Duchenne muscular dystrophy (DMD). Owner of a Las Vegas construction company, Harris built the local MDA Telethon set more than 15 years ago and each year at Telethon time supervises its assembly. With his workplace just minutes from the local MDA field office, he happily volunteers his services whenever they are needed. MG causes weakness in the muscles of the face, neck and jaw; and later in arm and leg muscles.

  • James Sullivan, 46
    Becker muscular dystrophy
    Hooksett, N.H.

    James Sullivan is affected by Becker muscular dystrophy (BMD) and walks with the assistance of a cane. A college graduate, he has served on several community boards in Hooksett and is active in the local historical society. He belongs to numerous clubs and civic organizations, including a choral group that performs at nursing and retirement homes, bringing joy to the residents.

  • Robert (Bob) Ciavaglia, 60
    Spinal muscular atrophy
    Hasbrouck Heights, N.J.

    Ciavaglia has spinal muscular atrophy (SMA), a disease that causes muscle weakness and atrophy, especially in the muscles closest to the center of the body. He uses a power wheelchair for mobility. Growing up with a neuromuscular disease, Ciavaglia was encouraged to be as independent as possible. His family helped establish the first MDA chapter in New Jersey, and he has been extremely active in MDA activities over the past 40 years. Ciavaglia was a senior analyst at PSE&G in New Jersey for 23 years, retiring in 2005. In addition to his volunteer and advocacy activities, he can be found dancing in his wheelchair or hitting baseballs to kids in the field.

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