03/02/2012
Valerie Cwik

I attend numerous conferences and meetings, and each time I return with new ideas and information. But, as I pack my bag for MDA’s Clinical Conference, I find myself filled with a unique sense of anticipation and excitement. Why? Because we’ve gathered hundreds of researchers and clinicians in the field of neuromuscular disease, all of whom have carved time from their busy schedules to dedicate two-and-a-half days for focused discussions that will translate into improved medical care for those MDA serves.

In addition to sharing information and answering questions about current research and best practices in the clinic, the agenda also will feature information about MDA’s transitions services for adults with what have traditionally been thought of as “pediatric” diseases. This new generation of people is living proof that we’ve come far in the medical management of these conditions.

But wait — there’s much more to this gathering of researchers and clinicians who’ve dedicated so much to the advancement of care for people with neuromuscular disease. Underneath the formal agenda, there’s a supportive mix of information and resources designed to enhance the learning experience.

Four individuals will be blogging about the conference each day. MDA Director of Basic Research Paul Muhlrad, who spends his days managing hundreds of grants and grant applications, will blog about sessions focused on current research. MDA Director of Translational Research Jane Larkindale will blog about sessions focused on new developments in clinical care — many of which, she notes with satisfaction, are a direct result of the success of current therapeutic interventions.

Angela Wrigglesworth of Houston and Vance Taylor of Alexandria, Va. — both of whom have lived their entire lives with neuromuscular diseases— will provide a personal perspective on conference content that goes beyond facts and figures.

All of the blogs will be available on MDA’s website.

Beyond connecting in cyberspace, we’re confident there’ll be lots of old-fashioned face-to-face conversations and exchanges of ideas. In addition to the top-notch presentations, one of the most important aspects of the MDA Clinical Conference is creating an atmosphere where doctors, nurses and allied health professionals serving on MDA clinic teams can meet one another, forge collaborations and build partnerships.

So, as you can see, there’s good reason for my anticipation and excitement about MDA’s 2012 Clinical Conference. I can’t wait to get started!